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The Canadian Consensus Criteria (CCC) suggests that some Drs wrongly call coping skills 'CBT'. chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://www.investinme.org/Documents/PDFdocuments/Canadian_ME_Overview_A4.pdf Page 10: 'Some physicians, who are cognizant of the biological...

This survey by MEActionUK 'Your experience of ME services' was submitted as evidence to NICE. SURVEY FINDS U.K. SPECIALIST M.E. SERVICES NOT FIT FOR PURPOSE '#MEAction UK survey of 1900 people with ME found that UK specialist ME services are not fit for purpose. 83.3% of respondents felt...

@Cinders66 wrote: ' .... + the Lib Dem’s are onside, & were the only ones to lead parliamentary challenge to the DHSC delivery plan.' Unfortunately since then Ed Davey has lashed out about sickness/disability benefits, alleging ".. quite a lot of fraud'. Disability News Service (September...

The survey by MEActionUK 'Your experience of ME services' was submitted as evidence to NICE. NICE MEAction Survey of ME/CFS Clinics Patient Experiences...

@V.R.T. - I'm sure that MEActionUK or/ Millions Missing did a very big survey on UK patients' experiences of the clinics. There was a very large document of quotes from the responders, a very useful resource. But I can't find the survey any more.

And the Under Secretary of State for Public Health and Prevention praising the Sussex Society: So both the MPs' (Sian Berry) Commons Question AND the Under Secretary's Commons Response appear to have been mediated byColin Barton for his sham Patient group/Society...

And the Under Secretary of State for Public Health and Prevention praising the Sussex Society: So both the MPs (Sian Berry) Commons Question AND the Under Secretary's Common Response appear to have been mediated by Colin Barton for his sham Patient group/Society...

See my post above. Not possible influence. Definite influence. Brighton/Sussex ME patients see our own MPs recruited for Sussex ME Society agendas from the minute they are elected into parliament.

Sian Berry MP (Brighton Pavilion), 20th October 2025: "To ask the Secretary of State for Health and Social Care, if he will hold discussions with the British Association of Clinicians in ME/CFS (BACME) on the geographical availability of regional specialist services for ME/CFS; and if he will...

Sian Berry MP (Brighton Pavilion), 20th October 2025: "To ask the Secretary of State for Health and Social Care, if he will hold discussions with the British Association of Clinicians in ME/CFS (BACME) on the geographical availability of regional specialist services for ME/CFS; and if he will...

Actual ME patients in Sussex and Kent don't get a quote, or ever a say in the Sussex ME/CFS Society unless they are useful to the 'BACME/Psycho-Behavioural/ME Patients Improve or Get Better apart from those disappointing few who remain bedbound' refrain of Colin Barton's. That Society...

Oh your poor mother. The blisters are horrible, so painful. I just had some on one foot but they have subsided. Clever you with the Nucala. And it worked! I am not on Omalizumab, but was checking it out just in case. Am on Prednisolone, high dose, and steroid cream, also Doxycycline...

Thank you for that @Braganca . I was interested because I've just been diagnosed with Bullous Pemphigoid (Autoimmune, itching skin and blisters, horrible) and Omalizumab is a medication that can used when the steroid treatments don't work. Groan - ME for 30 years, COPD 10 years and now my own...

I am wondering too. Does anyone who is clued up about medications, or who has taken it, have any comments on Xolair (Omalizumab) .

Big headline, big claims. What a stupid mess. Those researchers and the journal that published the 'sample size 18' study need restraining.

'Recovered' people do turn up, frequently attempting to sell you 'recovery' courses. Evangelising/preaching about 'ME recovery' is a weird phenomenon. Usually linked with one or other costly commercial 'recovery' courses, NLP based, targeting desperate sick people. There seem to be a lot of...

Pass the sick bucket. Note Colin Barton reinforcing his Society's near slogan of 'some of those affected can make significant improvements' .... while his 'ME/CFS' Society abandons all people with ME who don't improve, especially the most severely sick, who are not useful to CB's agenda of...

Action for ME made Dr David Strain their Medical Advisor in 2021. He is setting us back decades. https://www.actionforme.org.uk/about-us/president-patrons-and-medical-advisors/ Sonya Chowdhury, Chief Executive, Action for ME, says: 'Dr David Strain is our Medical Adviser and was appointed...

Thank you Trish. This is succinct. @Trish wrote: "Yes, that's clear. It's a mix of rehab specialists and occupational health specialists, which matches the content and purpose of the app and its funding. It's a mix of rehab stuff and stuff about employment and getting people back to work etc...

ICD 10 F.48.0 specifically excludes G93.3.