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I saw a well renowned cardiologist a few weeks back who mentioned that breathing is oft very shallow in pwME and PoTS, so one of the options for me might be referral to a breathing physio. Wasn’t sure what to make of it, but was exhausting just thinking about being taught how to breathe.

The very tired nerd in me is wondering if I can automate a regular check and to email me when it is updated. Then the really tired nerd says, actually, just look at it every now and again, don't make things more complex than they need to be

I was thinking just now that I might have to start checking regularly and keeping a close eye on Twitter..:laugh:

Ah, thanks, wasn't aware that it might have been from an FOI to a different source.

It does look like the more 'tricky' stuff is being delayed, based on what's in WDTK, so would be surprising if the embargoed copy had been released via FOI when it's not been released through formal channels. Could well be that the author of the article has mistaken the leaked release for that...

Unless they are fulfilling direct requests faster than those through WDTK? The stuff that came out before the RT, around the briefing to DoHSC was from a FOI request if memory serves. [edit as wasn't quite ready with another post and got a tad mixed up on my phone]

Interestingly, have seen someone on Twitter share an email from NICE, received today, saying the exec would be meeting next week. Now, whether this is just an email text prepared based on the various releases last week and not updated to say this week, or something more accurate to say they...

I did a quick search of the name associated with the only comment that is visible to me, and it definitely seems to point to a GP.

And, yes, I'm still bitter about the process, in case it didn't come across as such :laugh:

Is a really good article and refreshing to see. Your point about insurance companies is interesting, and you may well be right. As someone in the UK who went though a hellish insurance claim process for Income Protection/Permanent Health Insurance (I know am lucky to have such a policy and...

Someone on Twitter shared pics of the article. Not that easy to read as text is small, but possible.

I agree entirely with what you say, though, I think my point was more about Wessely et al putting their reputations on the line in 2021 or beyond to try to prove beyond doubt that CBT/GET work. Which they clearly won't because a) it doesn't suit their narrative of 'we already did this and it...

My wife just went a bit nuts when I told her about this article over lunch.. She was like, ffs, what do these people think? You all want to be ill forever?

A very well considered letter, many thanks for the time and effort that have clearly gone into producing it. Hopefully you will be able to share NICE's response in full in due course.

It may not be entirely relevant to this article, but, my wife and I were talking about PACE the other day (oh yes, livin' the dream, we wasted energy talking PACE) and it struck me that if Chalder, Wessely and co. who did PACE were so confident in their findings and that they could replicate the...

Interestingly he is now saying we can’t just ‘snap out of it’.. Am not sure if he is genuinely trying to be helpful or like Prof Garner, who was equally helpful at some point, about to do an volte face and say we are raging nutters. I sadly don’t trust him having seen his Twitter feed over a...

Me wonders whether those powerful people have found another useful idiot to engage with us in Dr Phil (a la Prof Garner) who will turn around and stab us in the back when his masters say enough of being nice to them, let’s use their interaction with you against them. Look out for his Private Eye...

Sorry if this has already been said/asked, (too many posts and Tweets to keep track of this afternoon). I wonder if the three BPS members that quit, along with Dr CS who was removed, have made the voting process unfeasible..and the weasel words that NICE put out is covering up for this? Could...

Or you can use Private/Incognito mode (depending on your browser choice), save logging in/out of Twitter.

I’m far more encouraged today seeing this lot walking out, than I was yesterday when just CS was ejected. Could it be that CS was sufficiently satisfied that the draft wasn’t going to be fundamentally changed that he was considering stepping down sooner (as he noted in the MEA release)? The...