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There are for sure a set of symptoms in CCI that do not typically present in ME/CFS. For example a quick worsening related to a change of orientation of the head and neck. I reckon Jen had a scary symptom where even her breathing would temporarily stop when her head was in certain positions...

Recovered, whether temporarily or permanently, to me it's amazing news that someone with such a severe case of the disease has actually improved this much and the step charts really tell it all. Of course it's an N=1 case, but I reckon it's not likely there will be one treatment that works for...

I was put on a course of fluoroquinolones a decade ago for an infection and it improved my ME/CFS symptoms somewhat. Back then my symptoms were mild so I didn't think about it twice, but there was an improvement in symptoms after around a week. I would probably try another course if I had...

It wouldn't actually surprise me at all if the nanoneedle test would also respond to other diseases on the same spectrum as ME/CFS. Robert Naviaux for example has looked at suramin use for both ME/CFS and autism and the other drug that made ME/CFS cells behave normal, copaxone, was a drug...

Looking at the probiotic on Amazon, it seems very much like a typical probiotic blend with all common Lactobacillus and Bifidobacterium strains. B. infantis in particular, which is included, has helped me with anxiety in the past, so you may want to retest with a brand which only contains B...

DNA viruses have been tested from blood, RNA have not, at least according to last October's symposium. I don't know what exactly is delaying them from the testing for RNA viruses, but RNA viruses like enteroviruses have been linked to ME/CFS more than any other viruses, so I look forward to RNA...

It wouldn't make much difference anyhow. These days healthy persons pop supplement pills left, right and center, there's the superfood boom etc. For example probiotics are now the first thing people mention to me when I discuss about ME/CFS and the hypothetical gut connection, as if I didn't...

Yes, and I agree with above that you are unlikely to get significant improvement in ME/CFS from any currently available treatment. My point was more that there are treatments that help with symptoms and those should be offered to ME/CFS patients. I have found plenty of supplements and...

I'm just skeptical that there will be "the drug" that will cure or improve a significant part of the patients with ME/CFS, at least not during my lifetime. Individualized medicine, by looking at factors like the microbiome and deciding the best course of action, may be the only way to obtain...

Immunologic Research from quick Googling has been around for 35 years, though it has apparently changed its name a few times. The impact factor is 2.5, which ranks it among the better 30% of journals. I fully agree with everything regarding a critical scientific and evidence-based view...

What happened to Mikovits was a sad story indeed and I agree that she completely lost the plot, but back in the day when the initial discovery was made, I remember that the traffic to PR forums more or less doubled and I started to see signatures left, right and center that said "XMRV positive"...

I find the blog post of the topic very interesting, so please continue researching the microbiome and its relation to ME/CFS. There are now several leading researchers in ME/CFS who think that changes in microbiome drive the disease, among those Dr. Armstrong, Dr. Lipkin and Dr. Unutmaz who are...

Hypovolemia is also detected in ME/CFS patients, so this would imply that deconditioning is partly responsible for ME/CFS symptoms. I have seen no evidence that deconditioned people develop hypovolemia or POTS. Some people with ME/CFS who are bedbound don't have POTS, whereas others do.

He is apparently friends with PDW. The common denominator with any supporters of PACE seems to be that they are in some way affiliated with the authors. I have yet to come across any independent researcher that would be willing to stand in defense of it.

I wonder if this cold theory could tie in with the metabolic trap studied by Robert Phair. I brought the subject up with him, but he didn't comment on it yet. According to the theory of Phair, the tryptophan trap could be triggered by a stressor like a cold exposure, so I wonder if activation of...

I'm skeptical to stress response being the root cause, whether physiological or psychological. Speaking of that, Cortene Inc. is currently trialing a drug (CT38) for ME/CFS patients that targets the stress receptors in the limbic system. I think ME/CFS is more complicated than that and that...

Yep, this effect is what I get when I get sick with food poisoning or a cold, symptoms temporarily resolve entirely (apart from the cold symptoms) for a day or two. Unfortunately I haven't found any way to replicate those improvements from other treatments, plus I get a cold only once every...

From my understanding LDN is more complicated than an immune boosting medication and I think the idea that anything that activates the immune system is necessarily bad in autoimmune diseases is outdated. Immune suppressants have been used for decades in diseases like MS and they have only seen...

Worth noting is also that Ron Davis has observed the "fever effect" on ME/CFS cells in the lab, or more specifically, he thinks it's not the fever itself but the infection that makes ME/CFS cells behave closer to normal (reference to video). I have experienced this remission as well, the two...

Well the BPS crowd wants that essentially none gets diagnosed with ME/CFS because it is apparently so horrific to hear the words ME/CFS mentioned that the diagnosis itself incapacitates people. This is what Jörgen Malmquist argued in a Swedish newspaper article earlier this year. It seems his...