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There are things on the horizon. The might have already found the "cure" in form of copaxone or SS-31, if those drugs provide systemic effects in the body similar to what was observed in the nanoneedle, i.e., they made ME/CFS cells behave normal. The depressing thing is that even if one of these...

It was either misquoted or taken out of context. The point she was making (even brain fogged I think I got the main point correctly) was that it could be that ME/CFS was triggered by a "hit and run" virus, which messed up the immune system and then left no traces behind, so the virus is genius...

Yes, Davis' group. It's over two years ago now when they detected the "something in the blood" (or more precisely in the serum) factor, which makes ME/CFS cells behave abnormally, but I still haven't heard much updates about it, other than that exosomes might be involved. Right now they seem...

Yeah I agree, there could be some consequences from this, which would not be good. However, I'd look at it optimistically this way. Either A) the drug fails to show any effect, in which case their hypothesis is of no concern and can be thrown to the trash can or B) the drug is shown to be...

Exactly, the entire model around depression was built around the monoamine hypothesis and later serotonin more specifically. To this day, there seems to be no consensus on serotonin levels and depression, I recently even read about a study that suggested anxiety is caused by too much serotonin...

It could still hold potential if PEM is a downstream problem. For example I'm not sure how Robert Phair's metabolic trap hypothesis explains PEM any better, since it assumes certain cells flip to a trapped state and remain stuck there, whether in PEM or not. Their theory sounds to me a bit...

Yep and he probably didn't even need to hire an actor. People are willing to claim much more outrageous things, like being abducted by aliens or that homeopathy or prayer cured their diseases and most of them are probably even honestly believing what they claim. Well, at least he hasn't disabled...

Who would you recruit to see ME/CFS patients then? Neurologists seem unwilling to even go near an ME/CFS patient, let alone hand out a diagnosis, based on my own experience and others'. We are left with the BPS folks as it is now, which is not good enough. People are completely dependent on...

Yep, it's pretty well-known that Hyde believes that ME can only be caused by enterovirus. But then again, many doctors also believe ME is encephalomyelitis of the brain and spine, as the name suggests, which has never been proven to be the case either. Then there are doctors who think CFS and ME...

-KDM (court case, soon retired) -Cheney (retired) -Lapp (retired) -Montoya -Hyde Chia next? And then there were none. These old school ME/CFS clinicians are clearly a dying breed, either due to age or the "ME/CFS curse" that universe has laid on any doctor who decides to see ME/CFS patients...

Tests can be run even though they are not necessarily diagnostic for any particular disease, even most routine blood tests like the CBC don't directly serve as a diagnostic marker for any disease.

On the surface it would seem obvious that it would not help ME/CFS, but it could be a little short-sighted. Ultimately, it could be that one day one of those co-morbid conditions will provide researchers the missing key and breakthrough to solve ME/CFS. That breakthrough could, let's say, happen...

I couldn't find the tweet where she advocates having one framework for all poorly understood diseases. IMO we are now just discussing another Twitter user paraphrasing Jen's opinion (the one quoted in above post), which might be incorrect. I'm pretty sure nobody in the entire ME/CFS patient...

It's nice to see trials carried out for something else than CBT/GET/LP/"insert your favourite brainwashing scheme", especially in Europe, where basically zero immunological research trials have been carried out. I'm skeptical regarding the choice of probiotic, however. Lactic acid bacteria is...

Setting aside the issue of MUS, I reckon the problematic with chronic Lyme is largely the same as in ME/CFS. ME/CFS often gets triggered by an acute viral, bacterial or other infection by a pathogen, but we still haven't figured out if the pathogen then persists and is responsible for...

I don't think Jen ever claimed fusion surgery was necessarily curative for ME. I reckon she has only stated she is currently in remission from the condition she had, which was diagnosed as ME. We don't have a clue about the actual cause or disease process is in ME, which means we cannot rule...

I have never heard of anyone getting ECT in Nordic countries specifically as treatment for G93.3 ME/CFS diagnosis. From my experience and reading stories of others, it is almost impossible to get any ME/CFS treatment in Nordic countries other than CBT/GET. Maybe they are giving ECT under some...

Yep, it's pretty amazing it took this long for what has been commonly reported by patients for decades, draws some parallels to the exercise supposedly not making ME/CFS worse thing. How difficult can it be to at least have the doctors tell the patients to reduce the dosage of such drugs slowly...

Yeah, as far as I know all the results we have seen from the research of Davis' group has been pilot studies based on no pre-existing work or hypotheses. Davis has explained this problematic, which boils down to the fact that the disease mechanism in ME/CFS is not understood, which is why they...

This is quite significant news if indeed their search for parasites and RNA viruses is now complete and produced no results. In late 2018 Ron Davis mentioned they had only looked at DNA viruses, so there was still no confirmation on the RNA viruses part. Previous findings of RNA viruses in...