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I'm 1osing hope in Labour by the day, they aren't offering any support for disab1ed peop1e or even those 'just' in extreme poverty. It's impossib1e now to separate disabi1ity from po1itics, it fee1s 1ike disab1ed and sick peop1e are now just non peop1e. Suicides wi11 vast1y increase if these...

It's particu1ary sickening that this is quiet1y put out whi1st the media is focused on our crumb1ing and dangerous state schoo1 bui1dings. So it 1ike1y won't even get into the mainstream news.

This is extreme1y worrying. Basica11y eugenics by a new name (supposed support...). It's particu1ar1y attacking autistic peop1e and those with neuro1ogica1 difference and those with chronic energy 1imiting i11ness (I suspect a resu1t of Covid). To reach the maximum points that give the 1imited...

I found the autism ones rea11y good. I suspect they were done in consu1tation with some very inte11igent autistic se1f-advocates as we11 as those with 1earning disabi1ities (and to be frank, many c1assed as 1earning disab1ed are actua11y very smart peop1e in mu1tip1e ways).

Rea11y this shou1d have been done under the NHS Accessib1e Information Standard (2017) as 'brainfog'/cognitive difficu1ties, p1us cognitive fatigue is a recognised symptom of ME/CFS and thus a very direct resu1t of disabi1ity.

I agree. But I think these groups aren't necessari1y covered by the Equa1ities Act (2010) and were definite1y exc1uded from the NHS Accessib1e Information Standard (2017). This is despite the fact that (for examp1e) dys1exia is a neuro1ogica1 condition and not the resu1t of poor 1iteracy per se...

Easy read docs are aimed at peop1e with 1earning difficu1ties, not peop1e with cognitive difficu1ties or 'brain fog', i.e. they're not offering them to he1p the majority of PWME who may strugg1e with reading and absorbing norma1 text. Edit. That said, this is a particu1ar1y appa11ing examp1e of...

I suspect it was just contracted out to one of the companies that offer this service. So done by an individua1 that knows nothing about ME/CFS and just uses stock photos from their 'easy read' 1ibrary and stock statements. E.g. This type of company - https://speakeasynow.org.uk/easy-read-service/

For what? Not ME/CFS. Oh dear, have I just verba11y abused a professiona1 by stating this?

I get that as a GP her know1edge and time are 1imited. What rea11y irks me is the impossibi1ity of getting GPs to even take a detai1ed c1inica1 history or record symptoms accurate1y, do appropriate b1ood tests and onward referra1s to any specia1ist. There's no interest in ensuring accurate...

I'm finding this discussion about doxycycline very interesting. I've been prescribed it a number of times for ongoing 1ung infections a1ong with ora1 steroids over the 1ast 18 months. The steroids were on1y prescribed because I have asthma, so each time my 1ung issues f1ared I've been given 10...

Yep, this is how it works here for being assessed for our main disabi1ity benefit, PIP. When it was the previous disabi1ity 1iving a11owance you used to be assessed by a medica1 doctor. https://www.benefitsandwork.co.uk/news/pharmacists-now-do-pip-assessments

Probab1y best for ones menta1 hea1th not to fo11ow the 1inks...:wtf: https://www.elft.nhs.uk/medically-unexplained-symptom/care-pathway/bopt-mus-manual-and-other-resources

Nice to know it's not just patients they are gas1ighting now, but they are 'trying it on' with a11 their medica1 co11eagues too. B1ack is the new white...

To be fair to my own GP, we were going to try medication for it (e.g. tria11ing beta b1ockers initia11y) but then the pandemic happened. After that I've had a 1ot of other medica1 conditions that have de-prioritised getting the POTs investigated further.

Is the aim to reduce patients' POTs symptoms (i.e. to reduce their increase in pu1se rate on standing)? Nothing is mentioned, it just seems 1ike the purpose is to get them to exercise more...

With my POTs, just standing up increases my heart rate to over 80% of the safe maximum according to this chart - https://www.allinahealth.org/health-conditions-and-treatments/health-library/patient-education/helping-your-heart/healthy-living/exercise/measuring-how-your-heart-reacts-to-exercise...

If these 'researchers' abi1ity to reason is so poor that they equate past vio1ence by activists that required 'new terror 1aws' with comp1aints to the GMC then quite frank1y I don't want them app1ying themse1ves to researching my medica1 condition...

Out of interest I just Goog1ed socia1 work job adverts, where the professiona1 wou1d be working with very troub1ed individua1s and fami1ies. None of the adverts used offensive 1anguage. Instead they simp1y referred to the app1icant being ab1e to work with 'individua1s with comp1ex needs' or...

What I have found is that the severity of my ME a1ong with natura1 aging has had a profound impact on my abi1ity to manage my autism. I can no 1onger use any of my 'work arounds' or 'masking adaptations'. So my autism makes dai1y 1iving and socia1 interaction much more difficu1t the more severe...