Search results

Interesting. I have severe ME and my cognitive functioning has been badly affected (but not as badly as my physical functioning). I have issues, like most of us, with memory, language, concentration and the fatigue that all of these things cause and that also exacerbates the problems I have with...

And in today’s episode of “No Shit, Sherlock”....

I have severe ME and had my first AZ vaccine about ten days ago now. For the first 48 hours I thought I’d got away with it as I felt pretty normal (for me), just a bit more sleepy in the afternoon than normal but I’ve been sleeping badly anyway so I can’t be entirely sure what caused the...

Was thinking this myself. Cartoons over people’s health, hmmm, it’s a tricky one to prioritise....

Another n=1 here - I take 10mg slow release melatonin, which is a big dose but smaller ones don’t work for me. I also have severe ME. Melatonin helps me *get* to sleep, although it doesn’t help me *stay* asleep, and I take zinc as part of my daily multi-vitamin/mineral (my attitude to this is...

Hubby says that the Secret Lab Facebook page is really helpful with deciding what you might need, he found them very responsive when he was looking at buying his. The chair does recline, and the seat tilts as well but they’re separate controls as it’s just an office chair for “normal” people...

I haven’t, but I can give it a go and see what it’s like. I’ll also try and find the details of the particular one he has if that would be helpful. I have to say, I’ve been very impressed myself with how comfortable it is when I’ve been well enough to use it, it’s firm but supportive. I’ll also...

We don’t have a recliner one but I can certainly vouch for the quality of Secret Lab chairs. My husband has one and he’s in it all day (IT consultant and nerd, so not only does he work in it, he does leisure time in it as well. He’s probably in it for 12 hours a day currently!) and it’s the most...

Really good to have other people’s experiences of this too, and glad,if that’s the right word, that I’m not alone! I’ve persuaded my daughter to get a Garmin as well - they’re not cheap, unfortunately, but I’m very impressed by mine although I did go for the upgraded aluminium body and gorilla...

“Start to unravel”....it’s like the last forty years of ME patients trying to get anyone to take any notice of them whatsoever have just dissipated into thin bloody air.

Though I did think it was quite funny that this is literally the only activity/exercise goal I’ve ever met using the Garmin .

This is both interesting and slightly worrying. I got a Garmin Vivostyle watch/activity tracker for my birthday last year and it does all sorts of very useful things to help me keep an eye on what’s going on with my poor beleaguered body in an attempt to spot at least some form of pattern to my...

“clowns”?

My horizons went from the whole world to the four walls of my bedroom.

George has done us proud. I hoped he would as I’m a long term fan of his writing and he’s a thorough and committed truth-seeker, but this is even better than I expected.

I’m a member of a Facebook group which is second to none for benefits advice. It’s run by and for people with ME and other chronic illnesses and all the admins are sick too so everyone understands exactly how challenging it can be claiming when you’re ill. I’ve so far managed to do four...

This is a thorough and outstanding piece of work, my immensely grateful thanks to everyone who spent their precious energy working on it, and also to everyone who contributed their thoughts as well. This would have been a major undertaking for any group, let alone one with members in such poor...

I actually spent a couple of hours reading Appendix G yesterday after very much enjoying Brian Hughes’ blog and I was really impressed, with my laywoman’s understanding of it anyway, of how specific and thorough the committee’s dissection of the evidence base has been, I can see now why it took...

“What may happen is an infection, a very stressful life event, or an accumulation of persistent stress causes worry and disturbs sleep at night. This leads to irregular times of getting up and going to bed, and more rests taken during the day. Thus the usual daily routine and normal sleep–waking...

I was actually told by a psychiatrist, to my face and in front of my husband, that my needing to use a wheelchair to get around, being unable to go out with my family, unable to get out of bed for much of the day, unable help care for my teenage kids, losing my hard won teaching career, my...