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Yep, even the bloody PIP form is better designed than this one. And that’s saying something.

If only these people would *finally* get as fucking sick of the sound of their own voices as we are….

Don’t worry, it completely caught me out too :). Which, of course, was entirely the point...;)

Make sure you read part two of the series before you do anything ….. Let’s just say it’s not quite as clear cut as it seems. Edit - clarity.

I buy John Lewis bedding be use of exactly this reason - I need the softness and smoothness too. I've got both their 200 and this one, the soft and silky range, which I find lives up to its description, although it's not cheap. But they do have a sale on at the moment, so there's that. I've not...

Is it just me, or does there seem to be a whole slew of fibro/psych/women interaction studies at the moment? Could fibro be one of the new battlegrounds, along with LC, for the BPS cabal now that they’ve lost the fight over ME, perchance?

Me too :) (Edited to add the forum smiley instead of my iPad one which vanished…)

Congratulations @adambeyoncelowe, what a lovely picture! You both look so happy, wishing you many more years of love and laughter together ❤️.

Me too, and my daughter who has POTS as well also struggles with this. We’ve both found lower leg compression stockings help with the pain immensely, although they’re an absolute bugger to get on and off (especially if you have extremely high arches on your feet…).

That’s really worrying. My eldest daughter has permanent post concussion syndrome as the result of a head injury from falling off her bike a few years ago, and the PCS has disabled her to the point of not been able to work and severely affecting her life in all areas. She lives independently of...

My youngest daughter, who has a diagnosis of EDS and has since she was 17 (she’s now 25) has been told on more than one occasion and by a succession of medical professionals that she can’t have the morphine she needs to treat the breakthrough pain (that occurs maybe two or three times a month...

I actually DO have a lower threshold to pain, or at least an odd reaction to it. I do have a fibromyalgia diagnosis as well as an ME one, but it was one of the first things I noticed was wrong (apart from being exhausted, of course). I had a routine blood pressure test and the pressure of the...

I have POTS but with hypertension rather than hypotension. My HR does the obligatory 30bpm+ rise on getting up from sitting or lying, and it can make me feel very ill indeed. Lying down will mostly sort this out, but there are probably more people with hypertensive POTS than they realise. I...

Unfortunately, every bloody pain clinic I’ve ever been referred to has claimed the exact opposite…. Edited for clarity of phrasing. Blame brain fog.

Truly, the hospital situation is shocking - we have one road that goes from where we live down to Inverness and in the winter it’s often blocked by snow. We’ve had one woman last year who ended up giving birth to one twin in a toilet block halfway to Inverness and the other twin in an hospital...

Thanks, Milo, I hope it does too! And yes, thank you, I was aware of that regarding the injection, and perhaps I misunderstood the procedure that Lisa had as I assumed it was similar to mine, but, even so, apparently one of the potential complications of this procedure is that the steroid can...

I’ve just had a steroid injection for hip arthritis done, like literally last week, and so far I’m actually having worse symptoms of low-level fever and inflammation elsewhere than I normally do. Some of this is probably just PEM from a 200-mile round trip to the hospital and the procedure...

Thanks so much for all your most generous hard work, Suzy, and for sitting through that marathon Zoom meeting for us all! Hope you’re not too exhausted.

I particularly like the bit where the minutes say that “the trial statisticians report that this change would have no impact on the analysis.”….

This is in the very first minutes of the TSC from April 2004 at item 7: “The outcome measures were discussed. It was noted that they may need to be an adjustment of the threshold needed for entry to ensure improvements were more than trivial. For instance a participant with a Chalder score of 4...