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  1. Beth

    An international emergency task force is urgently needed for Severe Long COVID and ME crisis cases - Sam Pearce (Sick Times)

    So many thoughts on this, frustratingly brain wont cooperate right now, one thought I can get out though is its a bitter pill to swallow that no one is going to held responsible for my deterioration and zero help/warnings and 19 years wasted on what could at least been monitoring and info...
  2. Beth

    UK Action for ME - policies, actions and publications - discussion thread

    Haven’t read through it all yet,definitely needs more on severe M.E. but was thrilled to see ‘Pacing should not be seen as a treatment, but more as a way of coping with the impact of ME’
  3. Beth

    BACME -The challenges from diagnosis to treatment mean that ME/CFS can have a dramatic impact on patients’ lives.

    Doesn't their severe M.E. Info/guides need changing still or is it not as bad as I'm remembering?
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