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Thank you very much for all this @ragelka . It's very helpful to read what people who've tried out the CE discovered, and their experiences with the courses. Thank you for giving such a thorough account of CE. The Chrysalis Effect (CE, also formerly called 'Get Your Life Back From ME')...

HIPAA? Do you mean this HIPAA? Or is there a UK one? ''HIPAA, the Health Insurance Portability and Accountability Act, is a US federal law enacted in 1996. It establishes national standards for protecting sensitive patient health information. HIPAA aims to ensure that individuals' protected...

It's all a stitch up. We've been stitched up Again.

Does anyone have a link for ELAROS' specific ME involvement being part funded by the DWP? Thanks. One link - 'Press release' £1.5 Million investment to improve in-work health services as part of government drive to tackle inactivity Recognising the need for transformative changes in the OH...

This !

But the language of the Bill uses the word "Constant". People having to do mandatory reconsideration or appeals can refer to Timms words in the debate/parliament, but the word "constant" will be interpreted by DWP decision makers as they want to. So could result in a great many unnecessary...

Lurgee Liz at 5.42 pm 'Nadia Whittome: Govt. amendments do not alleviate all concerns Bill will still take £3,000 pa from new claims. Benefit cuts trap women experiencing domestic abuse, make children grow up in poverty & even cost lives. NC10 requires Human Rights memorandum before Bill can be...

Lurgee Liz 5.07 pm: 'Cat Eccles: Nobody supports this bill...not even the UN. It doesn't have to be this way. Amendment 37: stop outsourcing health assessments to 5 private profit making companies, 7 in 10 are going to mandatory reconsideration & tribunal. All at DWP expense.'

Kirsty Blackman's points here apply to ME as well LurgeeLiz at 3.51 pm@ 'Kirsty Blackman intervention vocalising problem of Severe Conditions Criteria requiring NHS diagnosis plus lifelong diagnosis. Highlights those with schizophrenia or bipolar won't ever likely receive lifelong diagnosis...

'Lurgee Liz' 3.16 pm: 'Why does Kirsty Blackman think we'll be relieved to hear Timms' ridiculous explanation of "constant" requirement actually meaning "reliably occurring" for SCC qualification, it relies too much on discretion of DWP assessor. Bill says "constant", DWP will rely on this...

'Lurgee Liz at 2.44 pm (twitter) 'Kirsty Blackman bringing up the requirement to "constantly" have a Schedule 7 descriptor apply qualify for Severe Conditions Criteria. Timms comes back indicating it will be up to DWP assessor to probe further to ascertain if it's a reliably occurring issue...

Whether or not the UN statement influences MPs when voting for the BiIl, it is extremely embarrassing to the Government at this point. The letter includes: 'In particular, the Committee [UN Committee on the Rights of Persons with Disabilities] requests clarification on the following : 9...

Successive Health Ministers stated at APPG for ME meetings that ME should have parity with MS and MND for research and services. That was in the late 2,000s. Those Ministers are long gone and we still don't have parity for research or services.

Dear god. We are in worse position than 20 years ago. The UK medical establishment rolls on crushing ME patients to oblivion. But now there is also a massive industry of commercial 'cure' companies pushing science-free mind ideology and so called neuroplasticity 'fixes'. And now they...

This post and the following discussion have been moved from: Three part article on cognitive therapies, mindfulness, Garner etc., 2025, Long Covid Advocacy Substack article @poetinsf wrote: "You could get stress out by misbehaving people and end up with PEM (I don't know the "violent anger...

Hammond is a full blown saboteur of ME and the patients. He's just repeating the fatuous eulogies to Elaine Showalter when she published her 1997 book 'Hystories' that called ME a cultural illness spread by the media and compared ME with alien abduction. The press and chattering classes went...

The excellent Clare again (@ClrBlwrs) Clare: 'The government used a 2006 biopsychosocial paper by Gordon Waddell to justify benefit cuts' Clare: 'At the bottom of the page is a list of sources used as evidence.The first is:Is work good for your health and well-being? An independent review –...

Thanks to Clare for checking how the APPG for ME members voted, and tweeting this : How the members of the APPG for ME voted #TakingThePIP Yes: Jo Platt Debbie Abrahams Luke Charters Maya Ellis Louise Jones Jayne Kirkham Paul Waugh No: Tessa Munt Harriett Baldwin Sian Berry Ian Byrne Daisy...

Lucy Webster, journalist and disability advocate: "The bill has passed second reading. It no longer includes the new rules for Pip but has punitive measures for future disabled claimants of UC. It should have been voted down Remember that this doesn't mean the bill is law. It's now got...

Pippa Crerer, the Political Editor of the Guardian at 7.57 pm. "EXCL: Labour MP Rachel Maskell has tabled a new reasoned amendment, designed to defeat the welfare bill at tomorrow’s second reading vote. So far it has the backing of 35 Labour MPs, with organisers suggesting more could add their...