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  1. Lou B Lou

    UK House of Lords/ House of Commons - relevant people and questions

    Action for ME appointed Sian Berry as their newest Parliamentary Champion. On October the 3rd. https://www.actionforme.org.uk/sian-berry-mp-joins-our-parliamentary-champions-network/ Then on the 20th October Sian Berry asked this question in Parliament: 'To ask the Secretary of State...
  2. Lou B Lou

    Trial Report Effectiveness of a group-based self-management program for people with chronic fatigue syndrome: a randomized controlled trial, 2016, Pinxsterhuis et

    'Intervention: A self-management program including eight biweekly meetings of 2.5 hours duration. The control group received usual care.' 2 and a half hour meetings twice a week!! On top of traveling to the meetings. How mild/moderate would a patient have to be to keep up with those...
  3. Lou B Lou

    Who is Simon Wessely?

    Editorial. Journal of Psychosomatic Research. 1995 'The Legend of Camelford: Medical Consequences of a Medical Accident' Anthony S David and Simon C Wessely chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://www.simonwessely.com/Downloads/Publications/Other_p/camelford.pdf ...
  4. Lou B Lou

    United Kingdom: Sussex & Kent ME/CFS Society News

    That's what I just pointed out.
  5. Lou B Lou

    United Kingdom: Sussex & Kent ME/CFS Society News

    https://measussex.org.uk/build-on-the-positives/:mad::wtf::thumbsdown:
  6. Lou B Lou

    United Kingdom: Sussex & Kent ME/CFS Society News

    The deeply worrying Sussex NHS ME/CFS Service protocol. Heaven help new ME patients in Brighton/Hove and the rest of Sussex. 'Building up your Baseline, Increasing your activity and the benefits' 'Sussex NHS ME/CFS Service uses the term 'Building Up Your Baseline', with detailed...
  7. Lou B Lou

    UK BACME ME/CFS Guide to Therapy 2025

    Sussex NHS ME/CFS Service uses the term 'Building Up Your Baseline', with detailed instructions. Edit Add - there is No Reference to PEM in these NHS ME/CFS Sussex Services Pages. The Building Up Your Baseline link is at the bottom of the page on this link...
  8. Lou B Lou

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    Dextro Naltrexone - From the LDN Research Trust site: https://ldnresearchtrust.org/how-low-dose-naltrexone-works 'Naltrexone, taken at the full dose of 200mg daily, has been licensed for use for the treatment of addictions since 1984. (5) It is currently used for both opiate and alcohol...
  9. Lou B Lou

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    I made a transcript of Charlie Mayfields statements in the Good Morning Britain interview. Further up the thread. True Charlie Mayfield doesn't understand any of the 3 models, Medical Model, Social Model, BioPsychoSocial Model .... But his Report is significantly about how many people are not...
  10. Lou B Lou

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Thread on the Government's 'Keep Britain Working' Review and it's Lead Charlie Mayfield, his worrying interview on Good Morning Britain, in which he revives the BiopsychoSocial Model and applies it to sick/disabled people's inability to work. Despite him being completely unable to even...
  11. Lou B Lou

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    Charlie Mayfield appears to presume to redefine disability in that Good Morning Britain interview - He redefines Disability as 'Not Ill'. That would exclude all people with disabling diseases as 'Not Disabled', which would include Cerebral Palsy, Parkinsons, MND, MS, ME, etc and most especially...
  12. Lou B Lou

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    'Blaming the victim, all over again: Waddell and Aylward’s biopsychosocial (BPS) model of disability' Tom Shakespeare Nicholas Watson, and Ola Abu Alghaib May 2016 https://journals.sagepub.com/doi/abs/10.1177/0261018316649120 'The biopsychosocial model (BPS) of mental distress, originally...
  13. Lou B Lou

    BioPsychoSocial back in Disability Benefits Policy - Keep Britain Working Report

    UK Government published the 'Keep Britain Working' Report on Thursday 5th November 2025. With lurid Headlines everywhere quoting wildly irresponsible scare figures on how much sick/disabled people are costing the UK and how sick/disabled people are threatening the future of the country. The...
  14. Lou B Lou

    Pain Catastrophizing and its Domains Significantly Impact Rheumatoid Arthritis Disease Activity, 2025, Currado et al

    I find the framing of pain as so subjective really scary. If pain is so very subjective then what's wrong with physical torture, in fact what's the point of physical torture? I also think that pain specialists/psychologists/therapists/researchers/minimisers/gaslighters/etc should be required...
  15. Lou B Lou

    The biopsychosocial model

    No. Bio Psycho Social is Code for psychosomatic. It's not reasonable, rational or balanced. The term is too tainted to be useful.
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