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  1. Lou B Lou

    “We need to be believed": A qualitative interview study on the Hertfordshire (UK) Long Covid and Physical Activity Study, 2025, Logue et al

    @bobbler Wrote: "It’s not ‘stigma’ which is the first problem we allow people to get away with as a minimization but designed , systematized ostracisation." This! Thank you @bobbler. It's now accepted for all to write that ME and the patient are subject to 'stigma', or that the illness...
  2. Lou B Lou

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    The (over 750) Telegraph readers' Comments underneath this lurid mask-mocking article are truly frightening. 99.9% of the Comments to this article mock, denigrate and smear mask wearers as "Loons", "Branch Covidians", perpetually calling mask wearers 'mentally ill', portraying mask wearers as...
  3. Lou B Lou

    The Born Free Protocol

    :(
  4. Lou B Lou

    The Born Free Protocol

    Interesting: Salvatore Mattera, 21/12/2025: "There's this thing called the "Born Free" protocol for Long COVID and ME. If you tried it and it made you feel better, great. But I find it quite problematic and possibly dangerous. It's so long I can't do a full critique, but there's one part...
  5. Lou B Lou

    “How People With Chronic Fatigue Are Gaslit by Healthcare Systems” (States of Mind)

    Yes. Sorry @V.R.T. You are right. It's what the BPS rely on, when people are so sick and desperate to recover. .
  6. Lou B Lou

    “How People With Chronic Fatigue Are Gaslit by Healthcare Systems” (States of Mind)

    Yes. Except I've had a lot of times of medical gaslighting before, but mainly since, ME - but that has never made me doubt that I had a serious medical condition/disease. The repetitive meme that gaslighting makes the sick people doubt themselves is nonsense. The gaslighting makes everyone...
  7. Lou B Lou

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    ‘I think I will mask forever’: The ‘zero Covid’ zealots refusing to re-enter society While the rest of the world has moved on from the pandemic, a minority continue to shape their lives around coronavirus avoidance' Accessible Archive link https://archive.ph/SixUb#selection-3033.4-3033.133...
  8. Lou B Lou

    A patient perspective on enduring symptoms – the unmet need, 2025, Cheston

    ' ‘enduring symptoms’. These are chronic, often debilitating symptoms and syndromes for which medical evidence of disease cannot yet be found' 'Enduring symptoms' - just the latest synonym for 'psychosomatic', after MUS, MUPS, PUPS, PPS etc etc .... all terms that can be naively rationalised...
  9. Lou B Lou

    Helping nurses prepare for uncertainty in clinical practice, 2025, MAY

    'CBT for All' being one of Lord Richard Layard's slogans during his Mission for us all to become more Happy, less sick, less mentally ill, and far more Employed. CBT being the universal panacea that would accomplish all that.
  10. Lou B Lou

    UK House of Lords/ House of Commons - relevant people and questions

    Action for ME state it wasn't them who briefed Sian Berry for this Commons Question: Sian Berry MP: ...... ''To ask the Secretary of State for Health and Social Care, if he will hold discussions with the British Association of Clinicians in ME/CFS [BACME] on the geographical availability of...
  11. Lou B Lou

    United Kingdom: Sussex & Kent ME/CFS Society News

    Dr Alastair Miller: 'It is essential that those affected by MECFS are aware that full recovery is possible whatever the severity of the condition notwithstanding the negative messages propagated by some organisations and websites.' . Sussex ME/CFS Society Medical Advisor Dr Alastair Miller on...
  12. Lou B Lou

    United Kingdom: Sussex & Kent ME/CFS Society News

    Sussex ME/CFS Society Medical Advisor Dr Alastair Miller on what severe ME patients need, along with Paul Garner in the BMJ, 14th May 2025. Sussex ME/CFS Society News, May 2025: 'Patients with severe ME/CFS need hope and expert multidisciplinary care' By SMEAdmin On 15th May 2025 'Patients...
  13. Lou B Lou

    JK Rowling new book — chronic illness references

    Excellent! Thank You. JKR is now in such an ivory tower that all attempts to reach her with explanations of how damaging her portrayals of ME sufferers are - were met with silence, ignored.
  14. Lou B Lou

    United Kingdom: Sussex & Kent ME/CFS Society News

    Colin Barton claiming that Sussex ME patients are helped by Lightning Process as late as in 2020. Colin Barton's perpetually rosy message is 'timely diagnosis and receiving the best attention possible leads to people (ME patients) making significant improvements with some able to move on to...
  15. Lou B Lou

    United Kingdom: Sussex & Kent ME/CFS Society News

    @Sly Saint Wrote: "this page on their site of congratulations is revealing: https://measussex.org.uk/about-us/30-years-plus/ Pass the sick bucket. 27 accolades from the great and the good, all basically quoting or paraphrasing the Sussex ME/CFS Society's own perpetually self-aggrandizing...
  16. Lou B Lou

    UK House of Lords/ House of Commons - relevant people and questions

    Further to my last post on the BACME related Parliamentary Question from Sian Berry - We do know that previous Brighton/Hove MPs who were at the time Patrons of the Sussex ME/CFS Society did ask Parliamentary Questions that were very clearly prompted by the Sussex Society. This one about the...
  17. Lou B Lou

    UK House of Lords/ House of Commons - relevant people and questions

    We don't know who prompted Sian Berry's Question, who briefed her, and probably never will. However Sian Berry's position as Patron of the Sussex ME/CFS Society, together with the Society Chair's frequent lauding of BACME, suggests the prompting could have come from The Sussex ME/CFS Society...
  18. Lou B Lou

    United Kingdom: Action for ME (AfME) news

    Action for ME's most recent Parliamentary Champion (Green MP Sian Berry) asked the Secretary of State for Health (on the 20th October): ''To ask the Secretary of State for Health and Social Care, if he will hold discussions with the British Association of Clinicians in ME/CFS (BACME) on the...
  19. Lou B Lou

    UK House of Lords/ House of Commons - relevant people and questions

    Sian Berry MP was more likely briefed by the Sussex ME/CFS Society Chair (Colin Barton). The Sussex ME/CFS Society charity/faux patient group are affiliated with BACME and state that most of their medical advisors and ME/CFS specialist clinicians based in the Sussex/Kent region are members of...
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