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Thanks for this - good point. I'll feedback to Nikki. We've been overwhelmed (and a little bit emotional) about how many people with ME have already volunteered to take part - we were worried we might struggle to recruit! We will keep you posted.

There's a whole separate debate about research in physiotherapy -- however all evidence has to start developing somewhere! We've had some criticism within our profession about the fact we've championed not using GET when we aren't suggesting any alternatives. It's tough to offer anything other...

I suppose this depends on the definition of rehabilitation - I see it very much about optimising function holistically which may differ from how others define it. As physios for ME we took part in an education day to try and highlight this...

Thank you I will give it a go and keep you posted

The 1 minute sit to stand test is included in the NICE guideline for managing the long term effects of covid. It says "If appropriate, offer an exercise tolerance test suited to the person's ability (for example the 1‑minute sit‑to‑stand test)" Sadly there is no reference to PEM and the only...

Any of you clever people know how we can get sight of the REC application at all?

I've read the whole article. As a parent of two boys with ME, I took offence! I am still trying to regain my calm to write a proper critique!

And here is the second one

We've got two posters at World Physio Congress this weekend - we hope to share the posters with audio files and transcripts after the conference but here is a sneak preview

s Interesting. Adding 'costochondritis' to the list of things to investigate in more detail. As I mentioned earlier, we are hearing a lot about it in Long Covid and have previously heard about it in ME. Are there any papers/information sources you would suggest reading to learn more?

These are all very good points - and as I am not an expert in respiratory physio I don't feel I can really respond robustly. As I mentioned earlier, so much still to learn. We do know that there appear to be several different categories of "long covid" and it may well be that there are some...

We have heard from a lot of people with ME who have costochondritis (pain where the ribs attach onto the sternum) and people with Long Covid are reporting the same problem. I don't think we are sure what the cause of costochondritis is in these cases but it might be that altered breathing...

It's our fab American colleagues at PTOT for MECFS - https://twitter.com/PTOT4MECFS

I don't know what the BradCliff breathing method is exactly but Jessica has really embraced the learning from the ME world to how she works with people with Long Covid. She's become an advocate for pacing and PEM which is always good to see. She did ask us if we wanted to be involved in the...

thanks for sharing

We're trying to work out how to do just that

I have replied as well

Interestingly we are hearing lots of descriptions of GET which actually isn't GET at all but is pacing - it may explain why some people are saying that GET works because they aren't actually doing the purist form of GET!

I will try and see if I can find it