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I've just checked the event info and it is targeted at clinicians. Not sure if you had to say when registering. There were apparently about 280 people registered so if that's really impressive it is only clinicians

I stepped in for Nikki as she had a family emergency. It seemed like a really positive event - the hosts are both medics who have long covid (they are on social media) and the RCP in Edinburgh said they hadn't seen as much engagement on slido (where people were asking questions during the...

HI there - you can still register and access the event for the next six months

I believe that the greatest gain from protective health benefits of exercise (in the general population) are when sedentary people start to do something. As you correctly point out exercise research is focused on healthy people and looks at it with a deconditioning focus. We have spent so much...

https://pubmed.ncbi.nlm.nih.gov/35079817/ I have used this reference to describe potential links between Long Covid and ME and suspect it may be where some of the 50% figure comes from. It is a relatively small study and from 2021 so there may be something more up to date but I have found it...

I suspect it is highly unlikely that one of us will be going - although I would love to hear what some of the speakers have to say!

I will totally agree with you about this being a bizarre experience - it feels like we are shouting into the echo chamber about exercises being essential!

No none of us are part of BACME or worked in specialist ME/CFS clinics although we have worked with people with ME outside these clinics I've also worked in a Long Covid clinic at the trust I work at- they asked me to help specifically for my ME expertise as they realised they needed to know...

Thank you all for the positive feedback :emoji_blush: We have a page on our website specifically for physios https://www.physiosforme.com/physio-management and one that goes into some of the other tools in our toolbox that 'may' be appropriate https://www.physiosforme.com/what-else-can-i-do...

Thanks for all the comments on this - it is really hard to try and keep it brief enough that physios read it but to cover all the important information. We're hoping the link to our website will help with this and we've had encouraging feedback from people who have shared it with their physios...

It is taking a lot of self control not to comment on this thread of nonsense on twitter - mainly as I don't think I can say what I want to say whilst remaining professional.

Will have a look at this - thank you for tagging us

Thank you so much for this feedback!

Have you got Long Covid Physio on your list? If not I'm happy to contact them?

Hello We've signed it individually- I think we'd be happy to do a supporting letter as physios for ME if that would help. Please let me know Michelle

Thank you for all your ongoing support - it really helps us keep learning and motivated to keep going!

Thank you so much

Thanks for all the comments on this. I have to confess that I (Michelle) know very little about it but will share all this info with Nikki and Karen who are leading on this.

Thank you for the tag

I've been totally swamped at work so only just catching up with all the messages. We've not had any contact with A4ME about this.....