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We can only try! We are also thinking about how best to challenge it a bit more publicly if they don't respond to our follow up email

Sadly the response we received was not encouraging! We have written back pointing out the error of their ways again (more forcibly this time) Just a heads up - in their reply they told us that they have completed the consensus meeting to refine the framework (we tried to invite ourselves) and...

Totally agree with this

Our survey looked at physiotherapy in general so we can't really comment on GET based on the responses I am afraid.

We're currently writing an article for our physio bimonthly magazine - which gets sent to all members! Keep your fingers crossed

Meant to say Karen was there at the conference - We haven't seen them! Trying to find out more

I was just about to post this tweet - Karen is one of the four of us!

This is a fab thread and one I am really interested in. I have a few thoughts but they are really just ideas at the moment so will watch with interest.

@Michiel Tack my mistake - I thought there was an online comments section - thanks

I have tried to find where you can post comments on the article (just in case they chose not to reply to our email ;) ) - are you able to point me in the right direction as I can't find anywhere obvious!

The authors have done some other work linked to this (some of which has been published in our physiotherapy journal and which we are working our way through as we compose our response to the authors). One of these includes a qualitative focus group with some patients (16 in total - 4 of whom...

brilliant thank you - we will of course update you if/when we get a response!

As @PhysiosforME we're in the process of writing to the authors to try and raise some of our concerns about exactly the points you have raised - just wanted to ask if you are happy if we steal some of your wording to use in our email? Like you, our concern is that it could well cause confusion...

I cannot click to like this message!

Thank you for tagging us - thanks to others on this forum we have just been sent these. I have just looked at the first one which is fab - off to watch the next one now. I have shared with the others

Probably easiest to share some info from Macmillan https://www.macmillan.org.uk/information-and-support/coping/side-effects-and-symptoms/tiredness/what-causes-fatigue.html#6394...

Yes that was me! My day job is to set up and manage a programme of support for people who have just finished cancer treatment and I've also just completed a cancer rehab exercise practitioners course - physical activity makes a huge difference to improving cancer related fatigue. It's actually...

Adding it to the list!

Thank you so much for tagging us - I will have a look this weekend

Thanks for the tag - we are looking at the detail of this and hoping to make contact with the authors. We will update as we know more