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Their systems are based on belief or at least suspension of disbelief in cure X, Y or Z and on conformity to certain attitudes and practices. No point in objective discussion as objective analysis may undermine belief, which is part and parcel of their healing. Closed circuit. But we outside...

Thanks Interesting.

Just had/having Covid possibly first time. I have had myoclnic jerks of legs, ankle, palate, in throat, jaw, fluttering in middle ear , twitching toes toes, neck/head twitch on and off for 30+ years with varied intensity. During covid jerking of legs, jaw and head twitch were much worse. When my...

Fair enough. Thanks.

Basically I agree with you. They are responsible when treating the mentally ill in that they do not "psychologise" the conditions away or invent the organic component. This has not translated in the cases of certain prominent psychiatrists into a responsible approach to ME/CFS -even though it...

I agree but overlaps with psychiatric illnesses would not in themselves point to psychosomatic processes, as illnesses with psychological symptoms have organic elements in causation - vicious circles which spin both ways where the skill is to break the chain or brake the process at the most...

I' mot sure myself what I was getting at in the last para! Julia Newton did research on diagnosis of ME and found a large number of misdiagnoses of other conditions but also a cohort described as "idiopathic". My problem with that is that CFS/ME does not have an established cause and so in that...

I think this was true in the past. ME/CFS was presented as curable by CBT/GET and the physical identified with deconditioning. Either this was meant or it was a ruse to "hypnotise" the patient into appropriate behaviour since their condition and beliefs had "hypnotised " them into unhelpful...

Re. Dr Miller . Is everyone persuaded that L-C is ME? M emphasises symptoms as basis for diagnosis, observes disconnect between tissue damage and symptoms in much long - covid and similarity in symptoms with ME and assumes that is adequate to label L-C as ME. Based on symptoms seems an...

Work was done in the US claiming that sarin gas exposure in genetically prone individuals was at the root of the problem. I don't know about the quality of the work or how it fits with Times study. UTSW genetic study confirms sarin nerve gas as cause of Gulf War illness: Newsroom - UT...

IMO we are I think the term inflammation is used when immune activation would be better and I have noticed you object to inflammation as a term in some contexts, leaving at times imo issues of immune activation unaddressed. The cherry picking post I took as being addressed to me personally...

Has any role been found for TGF beta in promoting fatigue, since it is claimed here to play a role in sarcoidosis? Immunohistochemical localization of transforming growth factor-beta 1 in the non-necrotizing granulomas of pulmonary sarcoidosis. | American Journal of Respiratory and Critical...

Anyone come up with this peculiarity?

Has anyone been diagnosed with this antibody deficiency to polysaccharide encapsulated bacteria. Tests done on hemophilus pneumoniae and pneumococcus. I have low baseline abs but not yet had vaccine to measure response.

Passing a comment is not proper science but it may be helpful. There might be some "me toos" on this forum. Passing a brief comment about cherry-picking is not science either, as I am sure you would concede. My comment is brief and we could go thru my entire 39 year history to see if there might...

A few things fit for me - HLA type, periods of hypocortisolism, post vaccine initiation (not necessarily prompter) but I have been diagnosed after covid a_Z vaccines and 36 yrs after start of fatigue with sarcoidosis. I have some suspicion of Lyme and my HLA is also consistent with post Lyme. I...

Is all immune activation inflammation?

Effects of Ginkgo biloba on cerebral blood flow assessed by quantitative MR perfusion imaging: a pilot study - PMC (nih.gov) No idea of value or relevance of this. I link to it as Gingko enjoys some reputation for sarcoid fatigue. On the other hand active sarcoid cohorts have not shown 2day...

I think I agree with quite a lot of what you say here. I have always thought that if a test is found for acohort of ME/CFS then that cohort will be removed form the larger group and given its own name , unless it happens to be actual myalgic encepahalomyelitis. As to sarcoidosis I think many...

To answer a slightly differnent point, patients are in fact being diagnosed with CFS and or fibro alongside ongoing established sarcoidosis despite the fact that fatigue and pain are long established features of the condition. This may be because physicians do not know how to treat such...