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But if they now take a scythe to an overgrown beanstalk of mental illness and sneak in ME, Chronic Lyme etc, they can take a scythe to that too! Two birds one stone. Still dangerous adversaries.

Often MUPS are simply labelled as psychosomatic because currently medicine cannot explain them imo.

Preconceptions play a major role in what Drs have deemed probable. Getting the right tests can change the doctor's view of what is probable. 90's "medical" view of me a worthless congenital layabout "confirmed" by routine bloods. 00's it was fear of walkies and lack thereof. Now I have data...

Not only do they agree but many absolutely agree with her and with each other. They must all consider that they have appreciation of matters sufficient to absolutely endorse her, otherwise how would they know just how perfect the book is? Deluded. Fancy a critique on Amazon? Don't read the...

Mr Aternatively we explain away physical illness as difference or struggle.

Yes there is a video online helping to distinguish this type from an eejit.

It would be interesting to see what might be picked up on a 12 hr and 18 hr rpt CPET with controls or a 3 day rpt. Such tests might cast a light on this aspect of PEM and help determine if delay is obligatory, though shorter than a day for rpt may invalidate any controls if normal recovery and...

One problem here is that the 13% unexplained (I think referred to also as "idiopathic" by the NCU team) will fall under the category of "Unexplained multiple physical symptoms" and that is a direct ticket to BPS since the RCPsuych "explains" that MUPS is not unexplained and of various unknown...

Relief of 10 yrs 1st memorable thing that helped me was nystatin powder. Calf pains of 10 yrs standing gone within 1-2 days, and only mild and short-lived relapses. Stiffness of movement quickly improved. Whether this related to the result of moving a harmful pathogen or to the process (e.g...

Good question. From what I know of restless legs there is (often at least) an imperative to move for relief. As to crawly sensations and twitching , I would say "not restless legs". As to myoclonus generally againn "no", except as I recovered from my recent myoclonus episode I went through an...

Is exclusion of myoclonus as a sign of ME harmful, helpful or both/and? In the presence of a differential such as my own sarcoidosis, inclusion of myoclonus in ME it may be misleading. Further there is much dispute as to what symptoms in sarc patients are sarc and a debunking of parasarc and...

I read a page about turmeric being problematic for some with Lyme . The hypothesis was that it restrained cellular immunity and gave the spirochetes an easier time. After a worsening of symptoms I stopped low dose naltrexone with that possibility in mind. No rigorous science to back this up but...

Do you think there is any infection involved which would cause herx after abx?

My N-M stuff occurs at rest esp. after activity and most pronounced in states of infection or sarcoidosis flare. Ants crawling under skin (formication) may occur after food or even a glass of water, but so far exclusion diets have not helped. Thank you for the compliment but at the end. I don't...

Twitching in my experience has been palatal, inside the ear, digits, head twitch, jerking jaw, jerking legs etc, Some would be more like fasciculation but maybe the head. legs and jaw would be myoclonus. All part of the same thing imo, though not seizures as you say. High acute stress is imo...

Everything I write must be caveated by the fact that Lyme, sarcoid, glycogen processing and/or autophagy issues are possible differentials or co-morbidities. That said myoclonus has been a prominent feature of my condition and co-occurs with immune arousal and or infection. FND is not a place I...

Problem is how to measure (what would a 2 day cpet show?) and how to define. An up for grabs term still imo.

I can tick off all the various ME criteria over 30+ years though some have come and gone. Differentials are possibilities - in my case sarcoidosis and/or Lyme with further lab proof of a number of infections, some common others less so. Differentials are not of course necessarily exclusions...

A good number of sarcoidosis patients report life limiting fatigue and considerable exacerbation consistent with PEME descriptions incl. reversion to baseline. This is true of those with pulmonary variants in whom tests such a pulmonary FTs are within normal limits, but who have numerous abiding...

1) I thought that GWS does not show 2nd day worsening on 2 day CPET so any exertion intolerance in GWS should not ab initio be equated to PEM among 2 day CPET worseners. 2) Don't the measures on 2 day CPET show peripheral problems which are being correctly perceived as fatigue? I suppose that...