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Not all truths of medicine are scientifically proven so a useful therapy may not yet be deemed science based but it may be real in effect and have a sound but unknown mechanism. What was her condition? If inflammatory, many would say then not ME anyway, if sth to do with serotonin, possibly...

But any phrase will do in that world and it is the "Royal College of Psychological Medicine" and to be fair to the FNDer they are looking at brain waves nowadays. When I say medical I mean psychological, functional, biomedical, when some say medical they exclude psychological and FND, when...

Very interesting. Meanwhile sarcoidosis patients with an established and recognised immune condition accompanied very often by fatigue and pain are getting FM diagnoses on the "symptom list" basis. Infact it may not be a bad diagnosis as the immune disruptions may be similar to those found in FM...

I take your point but psychology is not ipso facto not medical, as BPS/Wezza etc repeatedly (and correctly) assert@ nor are functional disorders non medical. So a functional and/or psychological diagnosis is still a medical diagnosis and could easily therefore be an overdiagnosis or a wrong...

May I ask your view (if any) on this? https://aonm.org/mitochondrial-testing/ aonm is associated with at least one person who is not favoured by many on here, but the tests as far as i recall overlap with those Julia Newton used in Newcastle (UK) to investigate mit function in pwME (diagnosis)...

Yes there are a fair few sarcoid doctors who consider decline to be important in causing symptoms .

Sorry if this question is slightly off topic. Can anyone tell me how "normal %" is arrived at in PFT's? Is it that ca 100% of the general population with say 80% expected TLCO etc are asymptomatic or is it that 80% of healthy controls are asymptomatic or is it that 80% of the pateint population...

promoted sth like that , enhanced, sped up. provided optimal conditions, removed obstacle to recovery. I think you will get the picture. The Japanese herbal is anti inflammatory and promotes mito function, the -one drug affects serotonin . Tilled the land abit to help recovery "grow" There are...

Don't you think remission can be encouraged through appropriate support and treatment? That is commonplace in medicine and does not relegate a given condition to a biophysical nonentity, just one can get better more easily if the conditions are optimal. She was given both herbal and pharma...

Miller, as I read him , considers long coviders in the absence of evident organic damage to have ME ( without, as far as I can discern, considering the possibility of damage not yet evidenced ). It's just a symptoms game and matters such as 2 day CPET worsening found in some with ME but not so...

Reminds me of the doc that was on Scottish TV about ME some years ago, where they had one or two Mickell patients , one of whom at least had clearly not recovered and was cogitating on redefining his concept of health. There are one or two similar cases on the Recovery website which Garner...

Quite a few sarcoid sufferers are being given a CFS diagnosis but as if it were an alternative cause for fatigue , which is questionable, or on the other hand as if it were merely a list of symptoms and if you have then you can pile in, with aetiologies counting for little of anything. It's...

Markers of immune disturbance have been found up to 27 yrs before sarc diagnosis in a Swedish study. Numerous sarkies will say they ahve felt unwell for years and it makes me wonder if this is rooted in pre sarc phenomena.

May have been me. CS or another ME Assoc Rep has met up with some sarkies and was impressed by the degree of similarity between PEM as reported in ME/CFS and post exertional fatigue reported by current sarkies. Post sarc fatigue is certainly debilitating and may be accompanied by myalgias so it...

Did they in their world of non dualism give any regard to the fact that aluminium poisoning itself might increase propensity to anxiety whether as part of specific mechanisms or by inducing stress of general dysfunction and the experience thereof. https://thescipub.com/abstract/amjnsp.2011.65.69

I have not dome the vaccine provocation test, only baseline. Some UK immunology depts would only diagnose after provocation In my case the question arises of vacine provoked sarcoidosis and/or hemophagocytosis so I ahve to be cautious.

Would hemophagocytosis be of any relevance to this?

I thought clonazepam is in NM disorder rather than diazapam for effect on GABA in muscles.

I looked through my raw data on 23nMe and could not find any ClinVar reported polymorphism relating to the list from Decode. I am a monozyg for HLA DRB1 1501 which is a hit for chronic, esp pesticide and organic dust induced sarcoid and for fatigue states but found nothing else. I have a shed...

"Persistent physical symptoms arise when biological defence systems, evolved to keep us safe, go awry. If we all shout "not always, why not?" and "not in every case displaying such symptoms" they will come out with "we didn't say always..." "Approaches that work for many are based on...