Search results

I hope you won't be banging your head against a brick wall of people who have decided ME is subjective and that talk of objectivity is irrelevant, or possibly even worse,who accept objective talk for tactical reasons only.

Not infrequently those who have benefited from LP suggest that those who have not benefited or do not undertake LP are negative, defeatist etc. This is cruel and hurtful to many ME sufferers and importantly does not stand up to examination, even in the world of ME/CFS "headologies". LP is...

Their whole approach is based on non objectivity. Get a liaison with the patients by talking up the "reality" of the "illness" or of "real symptoms etc". Relax the patients, get them a bit fitter and less anxious about exercise + activity and hey presto...... Add to that the idea that the...

Broken toe - disorder but not disease - needs organic, physical attention. Deconditioning - ditto. But a broken toe is not deconditioning and the treatments must be different. Hence, even if we have a disorder which is not a disease but causes symptoms (illness), we can still press them on...

Because CBT/GET doesn't work well, because it is associated with denial of disease, because it is based on the assumption that acceptance of disease will undermine effectiveness of CBT/GET, because it is associated with claims that ME/CFS is a mental condition, because unlike in the case of...

Good point, but people's diagnoses have been questioned by other sufferers on the grounds that they have not been thru 2 day exercise and/or 2 day anaerobic threshold tests. It happens. I think my point stands that DRG, at least at the level which has led to death, precludes current SEID tests...

What I object to is that the whole piece was presented in the context of mental health care. The casual implication is that he had had a mental health condition, ie. ME is a mental condition. Good if he got well and he may have had some anxieties to overcome on the road to recovery, with which...

Dorsal root ganglionitis patients are proclaimed as ME sufferers. They clearly have an -itis, and itis diagnosis is generally viewed as indicative of inflammation. They are too ill to do a SEID test. They are some of the most ill among us and have been used to demonstrate the physical reality of...

Hello JE I have often wondered myself whether equations of raised proinflammatory cytokines equalling inflammation are valid, so thanks for the cotton picking analogy. Given language changes and that inflammation as originally defined very often causes pain and other pathological symptoms...

Good point, and maybe relative to what. IFN gamma can be protective at some stages of MS and against anxiety. There may be a pay off - the damage worthwhile, temporary, manageable etc. and better than the symptoms of the condition. The old questions - do some ME patients have an infection and...

https://www.healthrising.org/blog/2018/09/24/brain-fire-neuroinflammation-found-chronic-fatigue-syndrome-me-cfs/ When is inflammation not inflammation?