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https://ajp.amjpathol.org/article/S0002-9440(17)30894-5/pdf https://www.ncbi.nlm.nih.gov/pubmed/8968890/

The spirochete may nevertheless be present even if symptoms arise via other mechanisms. I do not think "antibiotic refractory" and "chronic" are synonyms. You may be right about antibiotic refractory Lyme arthritis, but that does not negate the concept of chronic Lyme. Spirochetes according to...

When does "chronic" start? How long do you have to have it before it is "chronic"? Does "chronic" mean "long term" or "without resolution post "appropriate" treatment" Who has decided which meaning it has? Is a given use internationally accepted and (unlike "illness vs disease" translatable...

Exactly. As to CFS vs ME it all drives me insane because you can be very ill with sth called CFS or sth called ME and a syndrome is just a collection of symptoms and 2 day CPET is useful but what e.g. about stages of recovery etc etc. and what about possible brain inflammation and what about...

1) Journos do not generally have much science background. They write well and opine profusely. Health articles need more than that, or to be frank about their limitations ('ave a go at this mate. It might do you some good. We found it in Closer magazine, but don't tell). 2) Left leaning people...

Didn't know that. Thanks.

Hello Esther The headline is imo problematic and dualist. If systemic illness causes mainly psycho-behavioural problems , then the illness can still be deemed psychiatric. In itself the term "psychiatric" does not exclude systemic physical. It is only when, in the pursuit of psychiatric...

Does he not realise anyway that taking a word which has routinely been used as an overarching term to include pathologies and symptoms and newly identifying it with symptoms only, is likely to cause confusion among the general populace? Or is he waiting to tell us all how naive we are and how we...

Hope it was tuneful!

Q. Are MS et al not taking advantage of an opportunity occasioned for them by the history of the English language to create categories on the basis of simplistic, language-conditioned dichotomies? What is Krankheit, what is sjukdom, what is bolezn'? They all are translated as sickness, illness...

Hi Peter What does "the sickest" in this context mean anyway? Most symptomatic would be better, but what of? A question which in the world of psycho fundies is disallowed so no one gets the wrong attitude, because apparently it works for some fro whom they are willing to sacrifice the others -...

I agree, but the problem is knowing who "we" are. There is a lot of skewed thinking around. "CFS is made up by Wessely et al" "We've got a new test for ME and a cure, if you fail you must have CFS, if they can't find anything else. Now I, who have been very ill with real ME, am going to get on...

Interesting that the Norwegian BPS guy sees extreme "ME" as being the same as mild, whereas SW has been raising the question as to whether these are separate illnesses. The hotch potch world of syndromes where any line can be drawn anywhere to define a syndrome........

Yes I agree with a good deal of this. 1) and 2) I just stick at "if you have symptoms you have ME" (short of an alternative diagnosis), if you then define ME as "the illness I got better from by......, and all other cases should get better by the same means" then you didn't have ME, because...

They might have been on the way to recovery anyway..... That said, personally I do pay attention to anecdote as its the best we have and the start of much scientific enquiry. I sympathise with Vogt in that patients should be believed ( apatient saying "I was in a wheelchair, was symptomatically...

Agreed. Sadly BPS is perfectly capable of making up a theory to "account" for this...... I am also worried about simplistic approaches to snapshot tests for ME biomarkers. If we go 100% for this or that biomarker ("You ain't got ME if you ain't got this/that biomarker") we have to be prepared...

I had to look the term OP up! Sorry for ignorance. I suppose all chronic, fluctuating conditions present this problem. Another complicating factor for ME/CFS is that some do recover, but the pathways to recovery are unclear and exactly when/how/why a recovery has occurred is not usually clear...

My experience is that increased walking over years did not lead to a maintained improvement, and in that sense the "improvement" I showed over several years was not "real". Nor did execution of this competence abolish intervening hours of fatigue, generalised fatigue or neuromuscular symptoms...

Good point and one of the problems is that people do not see us when we are in rest-recovery or relapse.

Fair enough, I just hope they care.