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Having now read https://drmyhill.co.uk/wiki/Response_to_the_paper_%27Assessing_cellular_energy_dysfunction_in_CFS/ME_using_a_commercially_available_laboratory_test%27_by_Cara_Tomas_et_al I think as alayman that there is more to discuss. I'd like to see a podcast head to head with audience...

Agreed From my position of ignorance your point sounds reasonable (no sarcasm intended btw). That's the kind of issue which it would be interesting to elucidate with McL/My. I have myself always wondered to what extent any findings on compromised mitochondrial function - if valid- reflect a...

McL is a senior scientist and it is reasonable not to expect such errors, though I accept your implication that in real life labs they do occur. Timing problems may be most likely but cannot be simply assumed and I think the points and questions should be put to Dr McL-H, which I hope he would...

Such questions need to be asked.

I suppose it's possible but I wonder as to mechanism. E.g. I was wondering if Mc/My ran a test on controls vs ME and did the ME batch after the controals, thus occasioning ME to produce worse mito function due to delay, or whether they got lots of ME diagnosed samples from clinics, kept some...

I do find it hard to believe that if Mc/My have found regular ME/control differences it's all down to processing time. Just seems bizarre that that would occur.

Great post. I get so frustrated when I think people of integrity are not getting together to hammer things out. Relative waste of two teams' talents.

I do see your point and there is the problem with WHO, which you rightly point out. As I see it ME encephalopathy = one less thing to be attacked on. I cannot with certainty say I have encephalomyelitis and I would prefer to avoid the argument with aggressive sceptic types. I suppose CS gets...

Fair point. I have fallen into the ME patients' trap of associating "syndrome" with "unexplained". You are right. I do think my point about diagnostic tests raising the question of an exclusion diagnosis still stands. All Downs people can (as far as I know) have one or other test to prove...

i believe CS is politically wise inn this matter. The trouble is that SM had dorsal root ganglionitis which is not encephalomyelitis. We already have neurologists ranged against us saying we do not have a neurological disease. IMO it is important not to provoke dismissal. Encephalopathy is...

Diagnostic tests for a syndrome is a bit of a word game anyway. What gets diagnosed? Is the syndrome being explained by the test and therefore no longer a syndrome but an understood disease/illness or is an exclusion diagnosis being implied for a subgroup? BPS cynics are always ready to point...

https://globallymealliance.org/news/can-biomarkers-be-used-to-diagnose-stages-of-lyme-disease/ Some interesting observations on CRP in Lyme. Early stage with EM raised, later with neuro symptoms not raised, nor among those with anti biotic responsive arthritis (unclear from text as to post or...

Science Media Centre.

Agree 100%. I am e.g. careful of e.g. LDN. Some antibiotics are anti inflammatory so maybe that could cover both risks.

Sorry overlooked this question. Chronic asymptomatic infection, should be understandable. Who would want to argue about that? Maybe the SMC.

If it's still there it's chronic and refractory to ab-x. Problem is how to prove it's still there except by symptoms, which might be due to debris, autoimmunity etc. Some labs now test for genetic types prone to autoimmune sequelae, alleged to bear more responsibility for the symptoms than the...

There certainly are.

I think we should go for consistency. Stages defined by usually accompanying symptoms (fuzzy boundaries) Chronic according to length of infection (again imprecise) Post in cases where overall the infection appears to be resolved but symptoms remain - with an open mind as to possibility of...

You may have chronic Lyme PRE-ab-x, surely? You can have it chronically before you even get a diagnosis. Post ab-x either ongoing infection, debris, autoimmunity or a mix of all 3 + other factors may be involved, which is a matter of dispute. My point really is that it is absurd to deny that...

Hello Mij, Would you allow/agree with the diagnosis "chronic Lyme/borreliosis" ever? E.g untreated cases of long duration, treated cases which continue to be seropositive and/or have PCR evidence? Such cases may not be the same as other cases with which you might have problems but surely the...