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    1/18/2024 US Senate hearing on Long Covid of the HELP (Health, Labor, Education & Pensions) committee

    I hope this is gonna be the takeaway message from this pandemic. We psychologize problems that we don't fully understand. It needs to be said often enough in public spaces that it comes ingrained with the general public. We psychologize problems we don't fully understand.
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    The Netherlands ME/CFS Cohort and Biobank (NMCB) consortium

    Nice. Still a bit sceptical about Raaijmakers being involved in one of the 6 projects with his links to COFFI, but his program looks good on first glance. Let's hope the entire thing yields some results.
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    1/18/2024 US Senate hearing on Long Covid of the HELP (Health, Labor, Education & Pensions) committee

    I think government usually changes through outside pressure, rarely from within. Wherever that government might be located. The small wins, the advocacy, the new pieces coming out in media about infection-associated chronic illness all contribute to that. Maybe the thing that's contributing...
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    1/18/2024 US Senate hearing on Long Covid of the HELP (Health, Labor, Education & Pensions) committee

    Granted, but I think Bernie Sanders more or less leads the progressive caucus and is a hugely popular figure in the US with two semi-successful presidential runs under his belt. He's not a PoC, but he has been fighting for civil rights, equality and more from the start of his career...
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    Dr Karl Morten - UK researcher based at Oxford University

    I think he talked about the phage test developed by Leicester university in this talk. Which isn't to say that's what he's gonna use, but if I had to guess it'd be symptomology + that test.
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    Dr. Anthony Fauci on Long Covid and ME/CFS

    He can apologize every day and twice on Sunday and I wouldn't care. I would rather have him use his position of influence to effect change.
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    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    More clutching at straws I'd imagine. Trying to sow a little discord etc. It isn't taking roots anymore, it seems.
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    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    I feel there's a fair bit of gatekeeping going on with regards to LC with people pointing each other to posts they can "attack".
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    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    I'm discussing the paper on a Dutch forum and it honestly feels like I'm talking directly to one of them. The same bullshit about psychosomatics not being explored. 30 years of research yielded nothing. No one says psychological diseases aren't real, yada yada yada. Even brings up PACE as an...
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    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    https://www.ad.nl/gezond/onderzoek-vermoeidheid-bij-patienten-met-long-covid-heeft-lichamelijke-oorzaak~a6d2a09a5/ https://www.nu.nl/wetenschap/6296728/wetenschappers-vinden-mogelijk-lichamelijke-oorzaak-postcovidsyndroom.html Could only get the headline for that, the rest is paywalled...
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    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    https://nos.nl/artikel/2503701-long-covid-is-lichamelijk-en-zit-niet-tussen-de-oren-toont-onderzoek-aan If it's on nos.nl I reckon it's getting circulation in the newspapers too. I'll try to get it onto some large forums in the Netherlands as well. The more people read it and the more often...
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    Muscle abnormalities worsen after post-exertional malaise in long COVID, 2023/4, Wüst, van Vugt, Appelman et al

    Nice to see good articles from the guardian for a change. Wish ME was included in it somewhere too, but can't have everything(yet).
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