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    Functional neurological disorder and somatic symptom disorder in Parkinson's disease, 2021, Onofrj et al

    Hopefully they blow up the entire profession in the process. It needs a reboot to factory settings. That's honestly my hope in this, that so many people get a look behind the curtains and see the puppetmaster because of the sheer amount of diseases they are forcing this on that there's a major...
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    "Can someone as Young as You Really Feel That Much Pain?" - A survey on How People With Fibromyalgia Experience Healthcare in Sweden, 2021, Hasselroth

    It's so weird to me how common it is in certain parts of the world. Circumcision that is. I know a number of Turkish guys that probably had it done as a baby/child, but other than that none that I know off.
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    Migraine treatments

    That sounds like hell. I remember a couple of female classmates having migraines too, my school at the time luckily just sent them home to recover. None of that pull yourself up by the bootstraps bullshit luckily. But still sounds awful to have, sorry you and others have to go through that.
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    A selective antibiotic for Lyme disease, Leimer et al. 2021

    There are a number of new treatments on trial/offer, one of which has abated a bunch of my symptoms. The problem with most is the host of extra problems that come with such treatments though. I got neuropathy in my feet, which luckily disappeared several weeks after stopping treatment, others...
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    A selective antibiotic for Lyme disease, Leimer et al. 2021

    Some things that struck me, it's apparently very specific to spyrochetes and doesn't do anything to anything else. Lyme bacteria can't mount a defense against it because of the way it enters cells. Because it resembles essential nutrients the bacteria needs to mop it up apparently, to use the...
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    A selective antibiotic for Lyme disease, Leimer et al. 2021

    Merged thread For the abstract of the paper and a link to it, see this post. The discovery that a chemical is deadly to the bacterium that causes Lyme disease but harmless to animals might allow the disease to be eradicated in the wild. “Lyme disease is well-positioned to be eradicated,”...
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    IL-6 and hsCRP in Somatic Symptom Disorders and related disorders, 2021, van der Feltz-Cornelis et al

    I know. I've had some discussions about benefits with some people in the last days here in the Netherlands and the amount of wishful thinking for lack of a better term... Thinking you can shape people just the way you want them to if only you give them the proper guidance. It's as asinine as...
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    A Comprehensive Examination of Severely Ill ME/CFS Patients, 2021, Chang et al

    Yeah, this whole transforming to PESE is a bit worrying to me. I can't speak for other patients, but when I do get PEM I get extra symptoms on top of a worsening of existing symptoms. I'm a far cry from being depressed normally speaking for example, but if I crash from eating certain foods it...
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    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    No, I followed a course of CBT/GET at Dutch recovery center het Roessingh in 2005.
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    Article Independent IE: Doctors urged to look out for chronic fatigue syndrome in long Covid patients (#Physios4ME)

    As part of the whole CBT/GET experiment they gave us breathing/relaxing exercises. The worse I got the harder these got to do for me. It's been about 10 years since I last did any I think, maybe more.
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    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    Him talking about self-pity is pretty funny in the context of the article just posted.
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    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    I tried to make sense of that, but still don't know what he's trying to say.
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    UK House of Lords/ House of Commons - relevant people and questions

    Yeah, that's a deviation from their waffle words regarding implementing "a" guideline.
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    UK: Physios for ME

    Horrible. Just when you think your contempt for certain people can't grow any further. Must be terrible for the physio in question too, to be gaslighted in such a way. *edit* I wasn't reading correctly. It was an account of a parent with M.E. told by this physio. But afflicted by another...
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    Why do BPS proponents keep ignoring the evidence against their ideas?

    She did offer to fix me up for a reasonable fee by the way, which I guess is nice of her and not conflicting with the work she does for UWV(DWP in Britain?) at all.
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    Why do BPS proponents keep ignoring the evidence against their ideas?

    I wonder how many diagnoses you could simply scrap if you were gonna look at the evidence behind it. DSMV might just be two pages long. I had to meet up with a psychologist to establish if I was lying about being sick for my benefits hearing in nl. Was a very long talk, asked all things about my...
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    Why do BPS proponents keep ignoring the evidence against their ideas?

    With regards to psychologists, my sister-in-law is a psychologist, is one of the sweetest persons you'll ever meet and always has my best interests in mind. It still doesn't stop her from coming out with completely unhelpful bullshit. It's the way psychologists are trained. One of the things she...
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    2021: Communications between NICE and the S4ME management committee about the paused NICE ME/CFS guideline

    What I am curious about is who from the RC's will be sent. Will it be the persons with the vested interests that are considered to be the experts or will it be senior members of the organizations that don't necessarily have a dog in this fight but have been told by said experts that NICE was...
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