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True, though I'd consider it a kindness not to be subjected to their treatment scheme. The woman was sort of in charge of the household, she wasn't involved in any of the therapy btw. But the more I think about it the more bonkers stuff comes up from my time there from basically everyone...

I actually am disproportionally moody when I've strayed from my diet. It does things to my gut and it pushes brain fog to greater heights. The difficulty expressing myself and being prone to all sorts of sensitivities like sound make me lash out to people close to me. It's got nothing to do with...

I think Monty Python could make a brilliant movie out of this bullshit.

Mine is drawn fairly regular too, will try to remember to ask.

Are they from the future?

https://www.s4me.info/threads/the-netherlands-€28-5-million-me-cfs-research-program-funding-awards-announced-april-2023.24587/page-18#post-483979 The relevant post, can't wrap my head around what is what atm, but that's the post where COFFI is mentioned in relation to a Dutch project. I see I...

Thanks Andy, it's nice to see work been done from my country. I do wonder if they're not late to the party with some of those studies.

Dunno, think it wouldn't be hard for him to set up a filter if it gets too distracting. And I'd imagine it's nice to be appreciated.

Also, as with all these sorts of posts. If you're well enough to leave a comment and possibly retweet that would be hugely helpful. The algorithm pushes up posts that are liked, but exponentially more if they're retweeted or commented on.

A Dutch member of parliament is raising a request to make 4.4 million euro's extra available for biomedical research. It's to make up for the 4.4 million euro's that wasn't adequately spent on the Lifelines-project.

It's par for the course really. I know people that got a PhD in psychology and even they admit it's all about finding labels for character trait and that you could basically label anyone with something. Some of her professors even admitted so. Psychology as a profession has exploded somewhat in...

I think it's something they tell patients to make them feel good about themselves. When I entered the course of CBT/GET in NL I got told I had perfectionist traits and that that was holding me back. Which in fact did make me think better about myself for a short while. I was a lazy sob as a...

It's perfectly possible that he hasn't found a way (yet), but that someone else might.

Tried to post a comment, but can't get a verification code to activate an account.

So patients DO send mails to researchers!

Roughly 1 million euros if google converted it correctly.

Very good question that I don't have an exact answer too. It's been about 13 years ago that I've stopped playing and at the time I didn't know about PEM, so I don't think I took much notice.

I've played soccer/football for a number of years after I've got diagnosed and feeling flat turned into feeling like garbage at some point.

I think the further you go down the equator the more the weather shifts to similar patterns as in here again. At least that's according to two Argentinians I used to know! So with that n=2..

Good to hear, thanks again. I was wondering, do people contact you to run a marathon or do you go places on your own and contact people there?