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Thanks for the comments Trish. My goal is to file them all, national, European and international. I think it's the only way this becomes worthwhile. If there's a Dutch group that's trying to influence perception then it helps being able to link them to a wider international effort. But that's...

Name of organization: Oslo Chronic fatigue consortium Statement: The ‘Oslo Chronic Fatigue Consortium’ consists of researchers and clinicians who question the current narrative that chronic fatigue syndromes, including post-covid conditions, are incurable diseases. Instead, we propose an...

I'm wondering if the collaborator bits and the papers/trials involving members of COFFI/EAPM don't boil down to the same thing. For example I could put Raijmakers' project under the papers/trials involving members of COFFI. *edit*: I adjusted it to name projects. I'm thinking about including...

Name of organization: EAPM Stated goals: The main goals of the European Association of Psychosomatic Medicine are to strengthen collaboration between researchers, practitioners and teachers in the fields of Psychosomatic Medicine, Consultation-Liaison Psychiatry, and Integrated Care...

Name of organization: COFFI Stated goals: The purpose of the Collaborative on Fatigue Following Infection (COFFI) is for investigators of post-infection fatigue (PIF) and other syndromes to collaborate on these enigmatic and poorly understood conditions by studying relatively homogeneous...

Ok, I've not been well enough to start this for a while. I don't know how to start a dumping folder on my pc and how to open it up. The way I would structure posts on different organizations would be: NAME Stated goals Members, where members are listed including their other collaborations...

I've read through the article. Thought that was a bit worrying. But the overall response in the entire article is that GET doesn't help patients at best and can make them suffer more at worse. It's not a perfect article but ultimately a good one. This is tremendous change from previous...

If he's as annoyed as we are I fully expect NICE to tear them a new one. Which might give us a good piece to work with in advocacy when something like the Oslo thingy pops up again with the same people involved.

Do you know if it's a recommended watch or is this something best avoided? Video is more than an hour long.

Signed, good to see organized pushback on this sort of nonsense. Maybe an idea for Scandinavia too.

I see someone else already commented in the same vein but while it's mean to paint us in a corner we can't get out of, there isn't really any intent to have biomedical science catch up. If there were they would've made the appropriate funding available and if they'd do that there wouldn't be so...

Equivalent of twitter for people who don't want to post on twitter I think.

Googled it and this was indeed what I was looking for: https://me-pedia.org/wiki/Category:Psychological_paradigm_proponents Rosmalen and the organizations I named aren't on there yet. Will look into it further tomorrow as I'm knackered now.

I thought it might be worthwhile to have a resource where we can quickly find affiliations and conflicts of interest for researchers of the various BPS groupings. For instance, Judith Rosmalen who is now the lead of the Dutch biomedical ME Lines project is also the chair of NALK(ALK is...

Do we have on these forums a thread which outlines all the different groups in which the BPS cabal is organized? And if not, where would be the appropriate place to start one? I've noticed the same people organize in different structures, the Oslo group, COFFI and at least one other. I think it...

Lots and lots of lip service is what I'm reading on that page and the pages it links to, with nothing tangible to back it up. I hope Sjaak de Gouw can do a full reversal to the agreed methods of selecting programs for funding, but I'm very skeptical.

That's fair enough yeah. A lot of tech can cause misery when used by the wrong people.

I see that youtube channel has very few followers, which is a good thing. Was gonna post a comment but that only boosts visibility of their shit.

Moved post What a muddled mess of an article if the translation is accurate. Tronstad tells about the biological abnormalities that they've found, then Reme gets to chime in with her bullshit. Tronstad and Schei seem to do a good job. PEM is mentioned as the most important factor...

Keep telling the truth. They're very well organized and have a lot of people they can get news to quickly but there has already been a paradigm shift where their treatment isn't the go-to treatment anymore in a lot of places. I consider this Oslo-thingy a nuisance but far from a loss as long as...