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This is precisely what happened to me. Had surgery, DVT & PE, hemorrhaging on the anticoagulants, AND gastroenteritis all within two weeks. I have never recovered. To complicate it further, right around 10 years old I started having frequent flu-like illnesses that caused me to miss at least...

As a writer, I can be a real sucker for a neat metaphor. But then I read Susan Sontag's Illness as Metaphor, which rightly disabused me of that rabbit hole. If only she was more widely read. WRT people with fibro or FND being more willing to embrace psychological explanations -- and especially...

It's like saying the flu is merely a case of acute fatigue.

This is the part I don't understand. My first question when I read the snippets that have been posted here was, "but, didn't they read the addendum from the 2014 review?!" I mean, it's the same damn company who did the review in 2014! Though I'm assuming (likely incorrectly) it's different...

Medscape: The Anxious History of Understanding Cortisol Came across this on Medscape today and since we've been having discussions on what "stress" is elsewhere on the forum--to say nothing of the many discussions on cortisol and ME/CFS over many years--it seemed a bit interesting to see how...

I don't disagree with this but in addition to patients just not being told the truth (i.e. there's nothing to be done), the big problem is how does one survive if one cannot work? That's where the real desperation comes in. It's not a medical problem at this point but a political economy one...

Alas, it only works on Mac it looks like rather than iOS, but I use this one and don't know what I'd do with out it: Screen Color Filters. It allows me to set it to a very dark red filter, meaning I don't have to wear sunglasses if I turn on my laptop when it's dark. It also has other colors you...

I absolutely agree with this and @MSEsperanza 's skepticsm. By doggedly insisting on explaining OI through a hemodynamic lens, Rowe et. al are causing real harm to those of us with OI that is clearly not hemodynamically mediated because clinicians then retreat to the “anxiety” explanation (and...

But...but...jobs! We have a Research-Industrial Complex to support! Seriously, this 1000x. I wish NIH and MRC would erect neon signs with these two short sentences outside their buildings. And beat it into every grad student, program administrator, journal editor, etc.

I feel a bit guilty as I was dithering about whether to post this here because technically the piece isn't about ME/CFS per se and I wasn't sure if I'd just look like I was shamelessly self-promoting. But @ahimsa finally did it for me. I'm glad you all enjoyed it! Originally I didn't include...

If "biopsychosocial" hadn't become so utterly meaningless at this point, this would actually be a moment in which it might prove useful. What we have here is: A biological disease, COVID-19, which has all sorts of biological post-infectious sequelae including long-term recovery and/or ME/CFS...

From the article in the New Republic that @rvallee mentions above: Thoughts on the possibility of type-1 interferons playing a role in ME/CFS?

Sometimes I wish we had a "fuck YES!" button in addition to a "like" button. This is the very thing in pain research that drives me absolutely crazy.

NY Magazine: We Had the Vaccine the Whole Time By David Wallace-Wells Curious about @Snow Leopard 's thoughts on this.

Quite. I took the same exception to Coyne's phrasing, especially as it plays right into the hands of the behaviorlists/BPS lot. We didn't do the convincing. The EVIDENCE did.

Years ago the UK SMC had something like the materials the NZ SMC has. I wished that I would have downloaded the materials because they were very good at explaining to the lay person (i.e. journalists) the basics of how medical research works (and why the findings SMC were hyping were bad). Alas...

Oregon to change how it reports COVID-19 recoveries

Medscape Medical News: Breathing Enriched Oxygen May Improve Major Depression

Yes, opioids, muscle relaxants, gabanioids, heat, warm-hot baths (but not too hot or OI gets worse and I'll have seizure-like episodes), sometimes ice packs, sometimes stretching are all helpful here too (though capsaicin is very hit or miss). Jury is still out on cannabis. Every time I think...

The key with massage for me has always been absolutely positively NO deep-tissue massage. Light massage such as myofascial release has made being mostly bed bound bearable, along with a wool mattress topper and a U-shaped pregnancy pillow.