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A petition created last March to 'Debate in Parliament the absence of an effective policy for the treatment of M.E' closed after only six weeks instead of the usual six months because of the general election, but attracted interest and support from quite a few MPs, maybe at least partly as it...

The ethics committee had also acted inappropriately by approving the feasibility study, as they knew the study involved participants undergoing the 'treatment' (as it was repeatedly referred to) so they should have rejected the application at the outset and advised Esther Crawley that she should...

This development was commented on by Invest in ME Research in their response to the NICE surveillance review last year. "It seems as though NICE is now complicit in the attempt in the UK to steer an increasing acceptance of CFS/ME in to the umbrella of functional (nothing wrong...

Don Staines: http://www.investinme.eu/IIMEC13-news-180208.shtml Hope you enjoy the conference and your holiday :):)

Maureen Hanson: http://www.investinme.eu/IIMEC13-news-180207.shtml Conference agenda here: http://www.investinme.eu/IIMEC13-13-13-Agenda.shtml

New speaker for 2018: http://www.investinme.eu/IIMEC13-news-180206.shtml "Invest in ME Research is pleased to welcome Dr Peter Holger Johnsen from the University Hospital of North Norway, Harstad, Norway to participate in the IIMEC13 conference. Last year the team at Harstad was awarded...

James Baraniuk: http://www.investinme.eu/IIMEC13-news-180205.shtml

A short video (in English and with subtitles) from Norway about 16 year old Emil's use of AV1.

@ScottTriGuy indeed, appearances can be deceptive, thank you for pointing all this out.

I'm sure there is nothing to worry about. The sponsors include proactive Canadian patient organisations, and the 3-day format looks as though it's modelled on the highly regarded and successful Invest in ME Research Conference week, which started in 2006 with a public day for everyone...

Ron Davis: http://www.investinme.eu/IIMEC13-news-180204.shtml

Latest statement from Invest in ME Research: http://www.investinme.org/IIMER-Newslet-1802-01.shtml

Thanks Andy, I've edited the original post to add the link.

I noticed this tweet by this Assistant Principal/Head of Upper at one of the secondary schools taking part in the trial. Good to see senior management being directly involved from a teaching/classroom management perspective.

Me too :emoji_thinking:

The correspondence between Mark Baker and Kathleen McCall has concluded with a final letter of 9th February, and towards the bottom of the page, "Finally, look at a communication below, from a patient, that has come to Invest in ME Research in the last month - a letter which neatly describes...

I made an offline donation today of the conference ticket price to help sponsor these events as, I've never been able to attend in person (only found out about IiME Research online after I was housebound): https://www.justgiving.com/fundraising/fundraising-4me (this link is also in the Science...