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Thanks, @Andy and @Trish. Interesting

That link isn't working for me. Is it still active?

Merged thread Cairo researchers posted a RCT of CBT and GET in post-COVID CFS in CliniclalTrials.gov in Sept 2022. https://clinicaltrials.gov/ct2/show/NCT05534997 Participants: 60 post COVID CFS patients selected using Oxford Brief Summary: The aim of this study is to investigate the effect...

Just to clarify - According to this page, the individual patient data meta-analysis review being done by Cochrane was withdrawn, I think around 2018. Did Cochrane reinstate that review? Or has another group initiated this review?

I had posted on Oct 2 that I anticipated the draft protocol would be released for review by the IAG and the public soon but did not have a specific timeframe for that. I'm asking but don't know anything further myself at this point.

Thanks @Hutan "Insurance Medicine" - who knew there is an American Academy of Insurance Medicine!! Our physician members typically serve as medical directors to insurance companies. Members may serve these companies as advisors for underwriting and consultants for claims and disability...

I was asked if I could share any information on the progress of the Cochrane systematic review for exercise in ME/CFS. I don't speak for Cochrane and I don't have a specific details or a date to share. But I am anticipating the draft protocol will be released shortly for review by the IAG and...

It continues to stun me that somatic symptom disorder is still considered a valid clinical entity that could ever legitimately guide clinical care or produce useful research findings. The criteria for diagnosis are essentially: One or more physical symptoms causing distress or disrupting life...

@Dx Revision Watch A question has come up on ICD-11 I'm hoping you might know. Now that ICD-11 is officially released globally, does WHO have a defined schedule to release updates to it? And will changes to the version of ICD-11 in the maintenance platform be implemented in that platform...

There are functional disorders programs in the US as well - this one at Mass General and another at Stanford. They call if Functional Neurological Disorders but it has the same DNA as the other functional disorders material I've seen.

Suzy - I've heard back from Ms Ramirez that the Excludes1 on G93.3 will be "chronic fatigue, unspecified (R53.82)." The current listing was in error as you noted. This will be listed in the addenda in September. Thank you for pursuing this. And thank you for the reminder on Snomed.

Thanks, Suzy I've contacted her as well. Will let you know what I hear

Presumably the actual text written in the diagnosis is still in the system also so the person's doctor should know that history. But you are correct from the perspective of reporting systems and research using electronic health records. In the US, the term ME has rarely been diagnosed and...

Agreed If I remember correctly, the presenter at CDC's recent community call for ME (who recommended graded exercise and CBT) stated that FM and ME are a continuum with FM - pain - on one end and ME - fatigue - on the other. Can't make progress with such simplistic views

Exercise reportedly helps people who have FM without ME but not people with both

Yes, this was not as presented at the meeting and appears to be an error Thank you for investigating and reporting, Suzy.

Thank you for posting this, Suzy. For everyone, I've included additional context below on the US ICD issue and its impact, what the orgs actually proposed, and what CDC then recommended. @Colleen Steckel - As you know, the CDC stopped using Fukuda for clinical diagnosis in 2017 when it...

Yea, remember that. And because CDC has refused to address it, they have given the space for clinicians like Gluckman to continue to recommend it.

Yes, they failed to look at the evidence properly but driving that was their misconception about the nature of the disease. Reeves, the leader of the CDC program until 2010, referred to the outbreaks in the 1980s as mass hysteria. He is the one who broadened the criteria for CFS to focus on the...

Exactly.