Search results

Very interesting discussion. I'm sorry I missed it. I wanted to add a few points... To @Jonathan Edwards' point, I agree that if a doctor is faced with a seriously fatigued person, then ME/CFS should be part of the differential diagnosis just as any other condition that causes chronic fatigue...

So are you saying that the NICE guidelines are intended to cover all causes of chronic fatigue? What about chronic fatigue due to cancer or heart disease or other conditions? Or is it just for unspecified chronic fatigue? I get that people with unspecified chronic fatigue need to be covered by...

Disease experts here recommend pacing (as patients know it) as the foundation of a management program. That form of pacing is about staying inside the energy envelope to try to avoid or at least minimize PEM and the associated crashes and exacerbation of symptoms. Because that's specific to the...

Then why does NICE spend all this effort developing guidelines, including those for people who have "ME/CFS"? How do they decide who should be treated by the ME/CFS guidelines if they don't have some 'features" by which to identify the disease? What is the point of the presentation section if...

But these are the NICE guidelines for the "diagnosis and management of chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy) in adults and children." Therefore, I'd expect the guidelines to clearly tell medical providers how the disease should be diagnosed because they need to...

I'm looking at the following in the "presentation" section of the full guidelines Section 1.2.1.2 states "Healthcare professionals should consider the possibility of CFS/ME if a person has: fatigue with all of the following features: a) new or had a specific onset (that is, it is not lifelong)...

My bigger concern with NICE is a question on how it defines PEM. If I understand correctly, NICE says the disease is characterized by "post-exertional malaise and/or fatigue" but then lists the worsening of symptoms following exertion as optional. Seems nonsensical to me

That's it. Exactly what I needed. Thank you! When I read this the first time, I was surprised that fewer patients met Oxford than NICE as I had assumed it would be broader. Perhaps an artifact of selecting by NICE first.

I think I remember reading a UK study that characterized patients by NICE, Oxford, and Fukuda and gave the prevalence of each. Does anyone remember that study and if so, could you share the study name or link? Thanks in advance

I understand what you are saying and agree that that's what we need. But we are not alone in needing that. Other diseases are in the same boat but dont get treated as a psychological/deconditioning problem. In the meantime, we have significant evidence of biopathology impacting multiple...

Good question. I'm at a meeting all week so cant give a full response but for a start... the impaired energy metabolism evidence - the 2 day CPET, the metabolomic studies, etc - is quite convincing to me as it reflects and helps explain the patient experience of PEM and it also could help...

Fantastic, @Webdog. I know how much this took. Thank you for being so persistent

Not disputing the reality of what you say. But what's remarkable to me is that the medical community requires proof of mechanism and a biomarker to reverse a psychosomatic theory that they accepted without any valid scientific evidence to begin with. Per Dalen, a Swedish psychiatrist, noted...

@Hutan - Great comments. Thank you for sharing BTW, This slide was fixed

Thanks for taking this and posting about it, Hutan. I emailed CDC staff on the typo and hopefully, they can fix it quickly. Good points on challenge of conveying PEM and symptoms only being present if you overexert. Are there any other specifics you would like to see addressed in fine-tuning?

Two more CMEs for physicians were released today by the Michigan State Medical Society (MSMS). MSMS is nationally accredited for health care providers across the United States. Both of these CMEs were presented by Cindy Bateman. 1. "Update on Chronic Fatigue Syndrome Part 1: Clinical Diagnostic...

@Dolphin - You mean of the slides? They can be downloaded from here: (https://img.medscape.com/images/907/632/907632_slides.pptx) Edited to add link to downloaded version of the slides in case people can access through medscape...

CDC and Medscape released a CME activity for physicians and other healthcare providers. This CME is a discussion moderated by Dr. Bateman, with Drs. Azar, Klimas, and Montoya as panel members https://www.medscape.org/viewarticle/907632?src=acdmpart_cdc I have not looked at this yet. This is...

CDC and Medscape also released a CME activity for physicians and other healthcare providers. https://www.medscape.org/viewarticle/907632?src=acdmpart_cdc This CME is a discussion moderated by Dr. Bateman, with Drs. Azar, Klimas, and Montoya as panel members I also posted this in its own thread...

Merge thread CDC released a video about ME/CFS on Medscape today. The video features Dr. Beth Unger and is directed at doctors, encouraging them that they can appropriately diagnose and care for people with ME/CFS. IMO, its generally pretty good although I wish they would explicitly discredit...