Search results

Yes - In the IOM report, the source of the 2.5M is CDC's report of "CFS-like" illness. The Georgia study used the overly broad Reeves criteria that included "unwellness" and more mental illness and as a result inflated prevalence 10 fold over CDC's own previous estimates. The Wessely study...

The lead author said "I hope these findings will encourage mental health professionals to think beyond diagnoses and consider other explanations of mental distress, such as trauma and other adverse life experiences." Or alternatively she might consider the 2013 criticism of the DSM-5 made by...

Wow. Amazing work @JohnTheJack Thank you!

Thanks for posting, @Andy I'll post the link once the PROSPERO link to the project description is posted.

I think IOM is generally pretty good but there are some gotchas to watch for. It reports an ME/CFS prevalence of 836,000 to 2.5M. But the supporting reference for that upper prevalence is a publication by Jason which includes this statement... The CDC currently estimates there are up to...

When asked by a major American TV show what had happened in Incline Village, Reeves, one of the authors and the CDC head, answered "That was hysteria."

Jason has done some good epi studies but the epi studies by the CDC have been awful. Their 2007 epi study reported a prevalence of 2.54% using the Reeves/Empiric criteria (10 fold over CDC's estimate in its 2003 epi study) that the IOM discredited for including an overrepresentation of patients...

I can understand the skepticism the article has generated. And I agree that we have lots of unreplicated studies and don't yet have a handle on the actual cause of the disease. But I'd disagree that we don't know anything about the underlying biology - for instance, what about CPET studies...

Thanks for that! I knew about that article but had missed it was in NEJM

OMG - I think I've seen it all and then this... "what we're trying to do here as I've said to you is to break this association between activity and your symptoms because equally if you feel rotten I still want you to do that activity...even if you're absolutely exhausted I still want you to do...

Its the New England Journal of Medicine has never published an article AFAIK. JAMA published an article by the IOM chair, Ellen Clayton. But also a number of unhelpful/poor articles - for instance a 2017 article promoting the GETSET study results and the CDC article reporting childhood trauma...

Were these training videos specifically for ME or more general videos?

Agree completely with @duncan - and that MUS is being presented as a unified diagnosis that should be investigated. The paper said although many "have other diagnosable and potentially treatable disorders, many have 'medically unexplained symptoms' - poorly understood symptom complexes that...

This will be very useful for patients, doctors, and lawyers

Thank you for getting this updated, @Webdog. The difference is significant and needed to change the "tiredness" narrative

Yes!. Thanks for catching that. FIxed

A thread announcing consultation on the draft document has been merged with this thread. Go to this post for the start of the merged thread. Consultation period 90 days from 17th May 2021. See this thread for commentary on the finalised evidence review: (CDC) Diagnosis and Treatment of...

And how can the Cochrane GET review claim no worsening of symptoms while the AHRQ concluded the following about harms from GET using essentially the same evidence. "GET was associated with higher numbers of reported adverse events compared with counseling therapies or controls. Harms were...

IMO, this is also a critical issue. As we saw in the 2016 Addendum to the 2014 evidence review by the US Agency for Healthcare Research and Quality (AHRQ), evidence of effectiveness disappeared once Oxford studies were excluded from the analysis. So all this discussion about low versus moderate...

The US ICD-10-CM took an analagous approach with CFS and it has had a negative impact as below. I expect FM would be similarly impacted. When ICD-10-CM was implemented here, CFS was equated to the symptom of chronic fatigue, and as a result, the same code is inserted in the medical records...