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Research news from Solve ME: Replenishing Body Fluids with Intravenous Saline Can Reduce Dysautonomia in People with ME/CFS

Copied post Research news from Solve ME: Replenishing Body Fluids with Intravenous Saline Can Reduce Dysautonomia in People with ME/CFS

An update from #MEAction on a new home help program in Minnesota : Advocacy Works: Fighting for ME/CFS and Long COVID in Minnesota

Updates from the Sept. 19th ACIP (Advisory Committee on Immunization Practices) meeting. Fair warning, a lot of detail: CDC advisory panel recommends keeping COVID-19 vaccine prescription-free (if your browser has reader view this web page is easier to read) The panel voted against...

News coverage from The Sick Times: Kennedy’s HHS commits to Long COVID, but without clear funding

As of yesterday Oregonians can get COVID vaccines at a pharmacy without prescription. News coverage by OPB: https://www.opb.org/article/2025/09/17/west-coast-governors-oregon-california-washington-hawaii-vaccine-covid-flu/ This news may seem a bit niche but it includes news about the Western...

The summary of the RFK Jr meeting by Betsy Ladyzhets seems a bit overly positive. I'm happy that there were some good moments. But several others have mentioned problems, like claims that post-vaccination issues are more severe than post-infectious issues when it comes to COVID. At least once...

I've been sick since 1990. One way I can tell is to look at people I know who are the same age or older than myself. For example, I have a friend who is more than 20 years older. She's 85. She can do so many more things than I can. She even goes to the gym. She doesn't need any mobility aids...

The second Pillow Writers Anthology (USA link) is now available on Amazon. All proceeds go to #MEAction. Update, adding more Amazon links for other countries: - UK Amazon link - Canada Amazon link Description from the Amazon page: There will be an online reading of work done by the pillow...

News in brief posts for the week of Sep. 8-14: Mastodon Bluesky

New blog post from Bateman Horne Center: A Center of Excellence Born from Urgency and Vision

The description of the #NotJustFatigue livestream starts with this line: "This first-of-its-kind livestream briefing puts policymakers face-to-face with the lived reality of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) ..." I looked at the panel and I don't see any policymakers...

Recordings of the 2025 RECOVER-TLC workshop sessions from Sept. 9-10 are now available: https://fnih.org/our-programs/recover-tlc-will-advance-long-covid-research/recover-tlc-hybrid-workshop/

Quick update - my husband (over 65) and I (under 65) got prescriptions from our doctor for the latest COVID vaccine. We plan to get our shots on Monday. Our doctor is in a smaller clinic, and there is no facility to store vaccine doses, so we can't get it in the office. Some folks in the USA do...

News in brief posts for the week of Sep. 1 - 7: Mastodon Bluesky

Here's some good news: Trump Admin Throws Up Hands, Pledges to Restore HHS Websites

Yeah, they are also posting on Bluesky: Just FYI, this guy is also posting on Bluesky. He starts out with a screenshot from this article which I found a little confusing (misleading?) But eventually he talks about Amatica tests: "We’re accepting more patient funded slots and you can join"...

Crossing my fingers for you! At this point I don't think we'll be able to pick and choose. We'll just get whatever COVID shot is available. I've got an appointment for two vaccines next week, flu shot and TDAP (it's been 10+ years so I was advised to get one). I hope by that time we'll know...

Gift link to a New York Times article with some data on COVID vaccines: Trump Wants Proof That Covid Vaccines Work. It’s Easy to Find. "In a post on Truth Social, the president suggested that the C.D.C. was being 'ripped apart' over a question that was answered long ago." This link to the...

I hope folks who understand the science behind this type of testing can comment on whether it looks like a promising test for research or not.