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Bluesky post from Solve ME: Link to the attached PDF: Supporting a Loved One Through a Disability Insurance Claim: ERISA 101 for ME/CFS Caregivers If you're in the USA, and you have long term disability (LTD) insurance through your employer, your LTD coverage is most likely is covered by...

Online Support Group from Bateman Horne Center Topic: Acquainted with Grief: Growing through Ambiguous Loss Tuesday, November 18, 1:00 pm - 2:00 pm MDT 8 PM in Great Britain & Ireland Advance registration required - Registration link (registration link shows time in your time zone)

Coffee with a Clinician: Part 2 Navigating Clinical Uncertainty Wednesday, November 12, 10:00 am MDT 5 PM in Great Britain & Ireland Advance registration required - Registration link (registration link shows time in your time zone) Coffee with a Clinician is free to attend, with an optional...

Online Support Group from Bateman Horne Center Topic: Denial, Resistance and Gaslighting Tuesday, November 11, 1:00 pm - 2:00 pm MDT 8 PM in Great Britain & Ireland Advance registration required - Registration link (registration link shows time in your time zone) If you're new to Zoom...

News in brief posts for the week of Nov. 3. - 9: Mastodon Bluesky

Blog post from Bateman Horne Center (much of the information is specific to the US). How to Be a Demanding Diplomat as a Severe ME/CFS Caregiver Blog Post | Thread

A quick update: I reached out to #MEAction on Bluesky to ask about this issue and they said it was not intentional. Bluesky posts by MEAction can now be seen without logging in (so no need for an account).

Discussion of recent research from Solve ME: Solve-Funded Study Finds Posture and Sex Affect Cardiometabolic Health in People with ME/CFS I believe the forum thread for the study Solve ME is talking about is here...

From MedPage Today: Public Health Workers March to HHS, Demand RFK Jr.'s Removal — American Public Health Association closes its annual meeting with organized protest

News in brief posts for the week of Oct. 27 - Nov. 2: Mastodon Bluesky

I noticed that the article in The Sick Times pointed to this definition of ME from Long Covid Justice: What is myalgic encephalomyelitis? It refers to the illness as ME* (with an asterisk) and has this section at the end: I know things in the USA (CDC, NIH) are a terrible mess right now, but...

Register Today for “From Mystery to Measurable: The Science Behind the New ME/CFS Blood Test” Date: Tuesday, January 15, 2026 Time: 9-10 am PT / 12-1 pm ET Registration link

Solve ME wrote an article on this (dated Oct. 9): Unique Blood-based Test Holds Much Promise for Diagnosing People with ME/CFS I searched this thread and did not see this link posted but please delete if this is a duplicate.

Two November webinars planned on caregiving (from a post on Bluesky): Edited to remove link to Bluesky post - for some reason MEAction requires login to view their posts :emoji_shrug:

New #MEAction advocacy action (for the USA) for social media posts. Sorry, I'm a bit late on the dates since this was planned for Oct. 29 - Nov. 1. But you can look for other posts and boost them even if you can't post anything of your own. Let’s Use Spooky Season To Advocate for Medicaid &...

News in brief posts for the week of Oct. 20 - 26: Mastodon Bluesky

News in brief posts for the week of Oct. 13 - 19: (had to skip last week, that's why it's missing) Mastodon Bluesky

Thanks! Here's a link to the Museum of Vancouver with more information about the exhibit, Living with Long COVID: https://museumofvancouver.ca/living-with-long-covid

Blog post from Bateman Horne Center, posted on Oct. 17. Kim Moy writes about Bateman Horne Center’s first Coffee with a Clinician webinar - Navigating Clinical Uncertainty - and shares some key takeaways. Guest Blog: October’s Coffee with a Clinician, Navigating Clinical Uncertainty

Blog post from Bateman Horne Center, posted on Oct. 10: New CPET Guidelines: What They Mean for People with ME/CFS