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[Note: I posted this here because of the mention of the #MEAction protest - Millions Missing 2022 - that happened at the White House today, Sept. 19. But feel free to move to another section if you think it doesn't fit here.] Biden Says the Pandemic Is Over. But at Least 400 People Are Dying...

Threads about different articles have been merged Article about today's protest at the White House from MedPage Today: "Long COVID, ME/CFS Patients Protest in Front of White House" https://www.medpagetoday.com/infectiousdisease/longcovid/100806 There was also a mention of the protest, and...

Final reminder - even if you can't do anything to participate or support this protest, that's okay. Tweet from MEAction: EDIT: changed link to a screen shot to make it easier to see the tweet

There are now two links that you can use to support the USA protest. This link sends an email to President Biden: https://act.meaction.net/page/44417/action/1 There's a form to fill out which requires your name, mailing address, email, and phone. These fields are required by the White House...

Interesting. I searched on twitter and found this webinar scheduled for November 22: https://ealthy.com/product/cognitive-linguistic-difficulties-in-adults-with-long-covid/

The Sept. 11 online training meeting didn't get recorded due to some sort of technical problem. However, MEAction has posted a video of the social media manager, Holly Latham, going through the Millions Missing 2022 Activism From Home Toolkit (a google docs file)-

Interesting coincidence. This article from NPR, about the problems with SSI, was just published today. High rents outpace federal disability payments, leaving many homeless https://www.npr.org/sections/health-shots/2022/09/15/1121848289/social-security-disability-inflation-poverty

Merged thread Why I'm Getting Arrested on Monday at the White House, and How You Can Help (Millions Missing protest in Washington, DC) https://thecrankyqueer.substack.com/p/why-im-getting-arrested-on-monday

Thank you, @Laurie P :) That article explains the situation quite well. To add another item that's related to financial support for disabled patients, one of the things mentioned in the training meeting on Sept. 11 (which I just remembered!) is the "Stop The Wait" Act. See...

I remembered one point from the Sept. 11 meeting that I want to share. When considering the algorithms used by social media (twitter, facebook, instagram, etc) those posts with unique content do better than repeated content. So the organizers recommend posting new photos rather than just...

Tweet sent by MEAction (USA) yesterday: "One week away! More info on how to take action from home coming your way tomorrow!" EDIT: Deleted some duplicate text (cut and paste error)

This is a short summary of the Sept. 11 online training meeting about at home actions. These actions are meant to support the in-person protest to be held in Washington, DC, on Sept. 19. I believe this slide presentation shown at the meeting, or some other format with the same information, will...

The UK protest in London was scheduled for a different date, Tuesday, Sept 13. That London protest has been cancelled according to this tweet from MEAction UK: The USA in-person protest in Washington, DC, is the one scheduled for Monday, Sept 19. The Sept. 19 protest in Washington, DC, has...

FYI, I plan to attend the session and will report back what I learn.

Twitter post from #MEAction

Reminder for anyone who wants to help out with the 2022 Millions Missing protest scheduled for Monday, September 19. There's an online training session tomorrow - Sunday, September 11, 12 pm Pacific Time, 3 pm Eastern Time - for people who will be taking action from home. I believe that...

Article from the Washington Post (no paywall) about fall booster shots for the USA. No idea how accurate this information is, just passing on the link: What you need to know about fall booster shots of coronavirus vaccine https://www.washingtonpost.com/health/2022/08/31/fall-booster-shots-2/

Two videos about orthostatic intolerance, part of the Project ECHO series for PASC (Long COVID) and Post-Viral Syndromes, have been posted to the Bateman Horne Center YouTube channel: Orthostatic Intolerance Part 1: Diagnosis From the video description: Orthostatic Intolerance Part 2...

#MEAction has posted the latest article in their "Facets of ME" series - Travel Tips Full article here - https://www.meaction.net/2022/08/26/facets-of-me-travel-tips/

Mildly annoyed to see these quotes from Matt Durstenfield (a cardiologist) near the end of the article: It's possible he was talking about a much broader group of "Long Covid" patients - those who do not have PEM, and do not meet the ME/CFS diagnostic criteria, and so on - but it's not clear...