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News in brief posts for the week of June 30 - July 6: Mastodon Bluesky

Terminated NIH grants are being reinstated almost entirely in blue states Posted in STAT+ (paywall) so I was not able to read it all but maybe someone out there can find a link without a paywall. Background: The term "blue state" means a state where the majority of elected officials are from...

The ME Association posted this message on Bluesky: More information on the CureME website here: https://cureme.lshtm.ac.uk/index.php/2025/07/02/coming-up-second-cureme-interactive-webinar-with-guest-speaker-dr-luis-nacul/ Registration link

New video from Solve ME, from their EmPower M.E. event on June 27: Pacing: Power In Slowing Down (EmPOWER M.E. 2025) Edit: Links to previous EmPOWER M.E. videos Each of the videos addresses a different topic.

News in brief posts for the week of June 23 - 29: Mastodon Bluesky - link is missing now so I've removed it from this post I had a brain fog moment today! I accidentally deleted the Bluesky post for last week's news. I thought it was an error, that I had posted this week's news using the...

Bateman Horne Center - Online Support Group Topic: To Be Announced Tuesday, July 8, 1:00 pm - 2:00 pm MDT 8 PM in Great Britain & Ireland Registration link (this link can display meeting time for your time zone)

From The Sick Times: UNC shuts down Long COVID clinic, leaving thousands without specialized care

Two upcoming webinars by Solve ME: 1) The ADDRESS-LC Trial: Studying the Impact of Bezisterim on Brain fog and Fatigue in People with Long Covid Tuesday, July 22 3 PM Pacific / 6 PM Eastern Webinar Registration (link can display time for your time zone) Description: 2) Probing Functional...

Some examples of problematic output from Chatbots/LLMs: 1. Fake citations for scientific research (studies that do not exist): https://www.politifact.com/article/2025/may/30/MAHA-report-AI-fake-citations/ 2. Fake citations for legal precedents...

I wasn't sure where to put the news about this group's July 9 webinar. So I created a new thread for the Patient-Led Research Fund organization. Please move this post if it belongs elsewhere. Website for Patient-Led Research Collaborative Linktree for Patient-Led Research Collaborative...

News in brief posts for the week of June 16 - 22: Mastodon Bluesky

I don't use a duvet at home whether it's summer or winter. I have seen them, in hotels mostly, but they are way too hot for me. Like others have suggested in this thread when I'm stuck with a duvet in a hotel I pull out the middle and just use the cover as a sheet. At home we have cotton...

New ruling, from a Reagan appointed judge (Republican, same party as Trump), saying that the NIH grant cuts were illegal: Judge rules some NIH grant cuts illegal, saying he’s never seen such discrimination in 40 years Note, this only applies to a small fraction of the cuts: Edit: Some...

I'm easily confused, so if this is off-topic feel free to delete it and send me a direct message reply! I know various ME/CFS groups have Facebook accounts (and sometimes private Facebook groups for members). But I don't know which ME/CFS groups offer online forums meant to facilitate support...

News in brief posts for the week of June 9-15: Mastodon Bluesky

Register now for Solve ME's EmPOWER M.E. roundtable, scheduled for Friday, June 27. From a recent email (Read full email here) Registration link

Monthly support call hosted by #MEAction: Caregiver Support Call - Online (Zoom) Saturday, Jun 21 3:30 - 4:30 PM Eastern / 12:30 - 1:30 PM Pacific This link will show the time in your time zone This online support call, held on the third Saturday of each month, is meant for "caregivers of...

News report from #MEAction: Minnesota’s Long COVID Funding Saved from Elimination Edit: Here's the article in The Sick Times which also covers this news.

Three training videos for Advocacy Week 2025 (beginner, intermediate and advanced) have been posted on YouTube. These videos are meant for people who have registered with Solve ME for this year's advocacy week, but I thought the videos might be useful for others who are planning to call (or...

That makes sense. It's not the platform at fault, it's who's running it and who is doing moderation (if any). For example, I'll bet some groups use XenForo for forums that are full of garbage but I quite enjoy the Science for ME forum.