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Email from Laurie Jones, Executive Director for #MEAction: Celebrating A Big Senate Win The proposal still has to pass the full senate and house but it's good news. EDIT: This same news has also been posted on their main website (link above goes to a newsletter distributed via email)...

I noticed that there's a scrolling section at the top of that website (Mirage News). For those who have trouble with motion on websites here's another source (Eureka Alert) with the same story: Why do symptoms linger in some people after an infection? A conversation on post-acute infection...

Bateman Horne Center - Online Support Group Topic: From Shame to Pride Tuesday, August 19, 1:00 pm - 2:00 pm MDT 8 PM in Great Britain & Ireland Registration link (link will display meeting time for your time zone)

Bateman Horne Center - Online Support Group Topic: Managing Physical Symptoms Tuesday, August 12, 1:00 pm - 2:00 pm MDT 8 PM in Great Britain & Ireland Registration link (link will display meeting time for your time zone)

In case it's helpful, the Bateman Horne Center did a blog post about this study today: An AI Map of a Puzzling Illness: How BioMapAI Tries to Decode ME/CFS, One Symptom at a Time

New blog post from Bateman Horne Center: An AI Map of a Puzzling Illness: How BioMapAI Tries to Decode ME/CFS, One Symptom at a Time Link to study from blog post: AI-driven multi-omics modeling of myalgic encephalomyelitis/chronic fatigue syndrome The forum thread for this study is here...

From the Center for Infectious Disease Research and Policy (CIDRAP) at University of Minnesota: Study finds no safety issues with most recent mRNA COVID vaccines

Posted on the #MEAction website on July 22: #MEAction’s Pacing Narrative Data Gets Published in First Paper + MORE Science updates! Link to study that uses data from the Pacing Narrative Survey: A Signal for Voice and Speech Abnormalities in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Help Advance Science—Find a Clinical Study That Needs You Link to Solve ME's list of clinical trials for ME/CFS, Long Covid, and associated conditions

The Summer 2025 issue of The Chronicle is now available from Solve ME: Summer 2025 Chronicle Previous issues can be found here

Study finds no evidence aluminum salts in vaccines are tied to higher risk of asthma, other childhood diseases

Maya Lindemann posted on Bluesky asking for input on the design of a study. I don't plan to fill out this form myself but I wanted to post it here for folks who know more about how to design a good study. Here's a link to the google docs form: (the link in the first post didn't work for me...

News in brief posts for the week of July 7 - 13: Mastodon Bluesky

An overview of this year's Advocacy Week. There were a total of 187 meetings with congressional offices, with 226 attendees from across 36 states and D.C. Advocacy Week 2025: Power, Progress, and Patient-Led Change Additional resources: Congressional Briefing: Urgent Action for ME/CFS (2...

Coverage of the July 9 webinar from The Sick Times: Live blog: Following the Patient-Led Research Fund summer 2025 webinar

Severe ME Artists Project 2025 Severe ME Day is August 8. Submission deadline for artwork is Thursday, July 24.

I've never had paralysis myself, but I have known several others -- a few in person (support group) and many more online -- who have reported intermittent paralysis.

Trump's second presidency begins: evaluating effects on the US health system

Saw this post, by The Disabled Ginger, that has some tips for coping with heat: Heat Waves, Wet Bulb Temps and Wildfires A quick comment - the colors on the website were a bit too low contrast for me. Hard to read what looks like dark gray on light gray. But I switched to reader mode (I think...