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Thanks, Simbindi. But it doesn't go as far as appeals, by the look of things :(

Lucky her ...

Does it really do that, sb4? I can't see increased adrenaline levels being compatible with restful sleep. Now I come to think of it, my caree has been complaining about feeling as though she's got more adrenaline/cortisol or something in her system since she went on to the increased dose of...

I had mine operated on when I was a child. I wonder if that's something they still do? You do have my sympathies.

I don't think they're comparable, are they? Anyway, the tribunal has asked for the paperwork for her ESA application from the DWP, so presumably they'll be able to compare.

I don't think we saw the report, just got the letter, went "thank goodness" and forgot all about it. Wish I could do the same with the PIP application :(

Well, I put it in my notes on my caree's most recent two ESA applications, and she got Support Group. I suppose it might be debatable whether the two are linked, though.

If it's the UK we're talking about, GPs tend to be under so much pressure that I don't think many of them have time for, independent thinking, shall we call it?

My caree was, but it amounted to CBT and GET as an inpatient at the Maudsley. Guess what the result was.

It's an absolute disgrace. I probably mentioned above that if I were a London Borough or two over I'd have loads more options. Coverage ought to be more or less the same throughout the country.

(BTW, I've added to my post #23)

What's a Centre of Excellence for ME? Is there one in Norwich?

Who are OMF? I'm concerned: are they looking for professional translators (in which case they ought to be paid!), just people with English and French Canadian, or what? Medical translation is a very difficult field, and potentially very dangerous if you get it wrong, so not something to be...

Oh dear, oh dear, disastrous appeal :( I'm going to write more about it in the Members Only bit, away from prying eyes.

She actually said today that it's when her whole upper body, especially the head, tenses up, and the insides with it.

Worth noting, perhaps, that that link is now dead, and a search in the public part of the website doesn't bring up any hits for nimodipine.

Although of course it's the fatigue which isn't substantially alleviated by rest, rather than the ME itself, which is rather what their phrasing suggests ...

Coming rather late to this, but I believe that most public libraries in the UK have access (via their websites? - mine does) to the electronic versions of most UK newspapers, so if you're a member at least you ought to be able to access it that way.

I'm planning on keeping the upright hoover downstairs, and the cylinder version upstairs in one of the bedrooms. Problem solved, I hope!

NelliePledge, if you get to that stage before us, would you mind letting me know how it works out, please? We're supposed to be buying somewhere, but it currently doesn't have a downstairs loo (there's just about room for one under the stairs), so I fear a stair lift is going to be essential...