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  1. Dakota15

    News from the USA, United States of America

    WALN (6/12/24): 'Seattle researchers say more resources are needed for Latinos with long COVID' 'In the early days of the COVID-19 pandemic, Dr. Leo Morales knew that the most vulnerable communities, particularly Latinx communities, would be the hardest hit by the virus' 'To Morales, these...
  2. Dakota15

    News from the USA, United States of America

    Medical News Bulletin by Joanna Mulvaney PhD (6/20/24): 'Prevalence of long COVID rises to nearly 7% of population' '...the number of Americans laid low with long COVID could rise to 40 million in the coming years'
  3. Dakota15

    News from the USA, United States of America

    Rep. Jamaal Bowman (D-NY): "I know many people are dealing with Long COVID, that continues to be an issue that's under-discussed. So, I don't think I would support an outright ban on masks. They should continue to be optional."
  4. Dakota15

    News from the USA, United States of America

    Forbes: 'Sen. Marsha Blackburn (R-TN) Warns Of COVID’s Lingering Effects On Labor: We 'Have A Workplace Shortage' 'At Tuesday's (6/18) Senate Finance Committee hearing, 'Work & Social Security Disability Benefits: Addressing Challenges..' Blackburn questioned experts..' 'it continues to be...
  5. Dakota15

    News from the USA, United States of America

    Greeley Tribune: ‘You’re in a room of people that get it’: Northern Colorado long COVID support group navigates life after COVID together’ 'The Long COVID Informational, Discussion and Support group is the only group of its kind in Colorado, according to a Colorado Department of Public Health...
  6. Dakota15

    News from the USA, United States of America

    Sharing for IACC purposes. 'NY’s Sen. Gillibrand pushes for $200 million in federal Lyme funding' 'U.S. Senator Kirsten Gillibrand of New York held a video press conference to announce her push for federal funding' '..complex chronic conditions that have not been well-studied…’ 'Gillibrand...
  7. Dakota15

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    STAT News: 'Readers respond to essays on long Covid...' “NIH needs reform and restructuring, key Republicans committee chairs say,” by Cathy McMorris Rodgers and Robert B. Aderholt "I agree with the authors that NIH needs reform. I was an athletic, otherwise healthy person who was struck down...
  8. Dakota15

    News from the USA, United States of America

    Science by Jennifer Couzin-Frankel: 'Antibodies from Long Covid patients prompt symptoms in mice' 'Two new studies suggest dysfunctional immune system attacking a patient's own tissues might drive the challenging condition' “This is strong evidence” for Long Covid being an immune-mediated...
  9. Dakota15

    USA: The RECOVER Initiative - Long Covid research

    'Pennington Biomedical researchers partner on award-winning Long Covid study’ 'Executive Director Dr. John Kirwan of Pennington Biomedical collaborates with research colleagues across the nation to explore potential roots of Long COVID’ 'Dr. John Kirwan is serving as a co-principal...
  10. Dakota15

    1/18/2024 US Senate hearing on Long Covid of the HELP (Health, Labor, Education & Pensions) committee

    Certain details have been asked to keep private which I will respect, but just sharing some high-level takeaways to this forum that are okay for public sight (for visibility and knowledge, and hopefully to give some degree of hope that these discussions continue to develop) that following the US...
  11. Dakota15

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I reached out to all of my elected officials right after the study release but the honest truth is that there’s not much they can really do under the current separation structure of NIH and Congress. I’d love to be wrong but that was my takeaway and also a reason that there’s a restructure...
  12. Dakota15

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Filled out the HHS Office of Inspector claim, as I hadn’t done that before (did AIRIO, HHS Office of Integrity, and submitted FOIA)
  13. Dakota15

    News from the USA, United States of America

    Sharing for sight for next week (6/25) Tufts CTSI: 'a virtual briefing on Long COVID in Massachusetts on Tuesday, June 25 at 12:00PM.' 'The briefing will be hosted by Representative Mindy Domb, Representative Marjorie Decker & Senator Julian Cyr, Chairs of the Joint Committee on Public...
  14. Dakota15

    News from the USA, United States of America

    Part 2 of STAT News with Rachel Hall-Clifford, health researcher at Emory University (37-minute podcast) STAT News: 'Listen: Why Long Covid can feel scarier than a gun to the head' 'Millions of people around the world are living with long Covid, a medically perplexing, and potentially...
  15. Dakota15

    News from the USA, United States of America

    Bloomberg: 'Searching for Data on Black Patients and Long Covid' 'Moderna teamed up with Team Wellness Center, a health-care provider for under-served people in the Detroit area, and http://People.Health...to gather and organize patient data.' "I was intrigued when I was offered a chance to...
  16. Dakota15

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Just sharing from Day 2 of ACD last week now that the recording is up: https://videocast.nih.gov/watch=54654 (starts at around 1:03) Bertagnolli on RECOVER: "This is our interim progress, moving forward to a new stage of enhanced focus.." Auchincloss: "About 17% of adults in this country have...
  17. Dakota15

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    World Federation of Neurology: 'Neuro-ID Update [June '24]' by B. Jeanne Billioux, MD & Avindra Nath, MD 'For this Neuro-COVID-19 update, we review several recent articles on SARS-CoV-2 viral persistence, including Post-Acute Sequelae of COVID-19 (PASC), or Long-COVID' '..the findings suggest...
  18. Dakota15

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Neil Shapiro, Associate Director for Budget, NIH at ACD last week: "RECOVER Initiative has really been NIH's top priority in terms of advocating for a portion of those funds to be allocated by HHS for this type of research" (at 58:11) Director Bertagnolli: "RECOVER. I want to touch on the...
  19. Dakota15

    Long Covid Moonshot Initiative

    Moved post STAT News: 'Long Covid feels like a gun to my head' 'I have spent my career studying infectious diseases that fall under the heading of neglected tropical diseases. Now I have a neglected disease — long Covid — an incurable (for now and for me) disease.' 'I am inspired by the work...
  20. Dakota15

    Covid-19 vaccines and vaccinations

    Bloomberg Law: 'Kansas Sues Pfizer Over Covid-19 Vaccine’s Safety, Efficacy' 'The lawsuit was filed by state Attorney General Kris Kobach in Kansas District Court, Thomas County.'
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