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  1. Dakota15

    POTS - definition, diagnosis and symptoms

    Presentation now online from this week's: "Could a Common Condition Called POTS Explain My Chronic Fatigue Syndrome? (Tae Hwan Chung, MD, Director/Founder, Johns Hopkins POTS Clinic Program) (~57 minutes)
  2. Dakota15

    News from the USA, United States of America

    @dave30th mentioned in this talk from 6/19 (30-min podcast with Rachel) https://archive.ph/L5C4z
  3. Dakota15

    USA: The RECOVER Initiative - Long Covid research

    [mods feel free to move to where most applicable] "Lauren Stiles of Dysautonomia International on Her Story and What's Exciting Her Now' "...NIH actually wrote back to us and said we're worried about calling it POTS because people might think it references marijuana.." "They ignored most of...
  4. Dakota15

    USA: News from the Bateman Horne Center

    KSL NewsRadio: “The long arm of long COVID” “6.8% of adults in the United States have long COVID,” said Dr. Melanie Hoppers, a practicing physician, board certified in internal medicine and pediatrics with the Bateman Horne Center “5.8 million children in America have long COVID, which...
  5. Dakota15

    2024: Twitter campaign aimed at John Oliver and Jon Stewart

    Seems apt timing to share on his advocacy in certain causes previously: "How Jon Stewart Became a Fierce Advocate for 9/11 Responders"
  6. Dakota15

    News from the USA, United States of America

    Weekly Pod with Jon Stewart, 6/27/24: "...the long COVID community, that's a really interesting one - because there are, from what I'm understanding, and I, unfortunately I'm not very well versed in all that. But like millions, we're talking about millions of people - that have residual effects...
  7. Dakota15

    News from the USA, United States of America

    House of Representative, Judiciary Committee (6/26): 'Follow the Science?: Oversight of the Biden Covid-19 Administrative State Response' Congressman Thomas Massie (R-KY): 'The Microvascular Research Foundation works to develop effective research-based treatment protocols for patients suffering...
  8. Dakota15

    News from the USA, United States of America

    University of Missouri-St. Louis: “MIMH’s Precision Health Research team studying effects of COVID infection in HIV patients, with implications for wider population” 'an estimated 30% of cases, still leading to symptoms such as fatigue, brain fogginess or post-exertional malaise that can...
  9. Dakota15

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    From Aspen Idea Health Conference (6/21) Q: "What is CDC's role regarding Long COVID?" (44 min mark) Cohen: "Obviously, we have learned a lot about the impact of viruses and frankly, we're learning so much about what we don't know in terms of our own immune systems - why do some people get so...
  10. Dakota15

    News from the USA, United States of America

    (a 'way back Wednesday' throwback) The BMJ podcast interview, 9/18/20: "Anthony Fauci - on..Long COVID.." Fauci: "We're learning week by week & month by month about this disease...we need to pay attention, we're starting to see things that are what we call emerging information. Clearly there...
  11. Dakota15

    News from the USA, United States of America

    90-minute recording from yesterday's "Legislative Briefing: Long COVID & Health Equity, Part 2: Moving to Policy Solutions, 06.25.24" with Rep. Domb of Massachusetts.
  12. Dakota15

    News from the USA, United States of America

    Daily Hampshire Gazette: 'The lingering effects of long COVID: Domb hosts second briefing on the topic' "Domb called the virtual briefing — the second such gathering this year — to hear what public health officials and health care administrators had to say about the lingering effects of long...
  13. Dakota15

    News from the USA, United States of America

    (not to overdue it, last one based on timing - with his book tour he may be aiming to raise awareness in this space and [possibly?] advocate for, I suspect or wonder) Short clip from Dr. Fauci, 6/25/24 with 'The 92nd Street Y, New York' 'There's a lot of work now that's giving us some insight...
  14. Dakota15

    News from the USA, United States of America

    I know recordings from today’s webinars should be up in the next week(s), but sharing some screenshots if helpful for anyone with wanting to catch or view in the meantime from today. If any that tuned in want to share any thoughts, other screenshots I missed, etc please feel free to share...
  15. Dakota15

    News from the USA, United States of America

    2/1/24: 2024 Whittington Lecture at Georgetown with Dr. Anthony Fauci, Pandemic Preparedness and Response: Lessons from COVID-19 (39th min) "..finally, there's something we have not seen with other viral infections and that's the post-acute sequelae often referred to as Long COVID, which means...
  16. Dakota15

    News from the USA, United States of America

    SHNS (Massachusetts): 'Briefing Planned To Better Understand Long COVID' 'Doctors, public health officials and others will brief lawmakers Tuesday on potential steps state government could take to address health equity implications of long COVID and to support people..’ 'Department of Public...
  17. Dakota15

    News from the USA, United States of America

    @Hutan On that note, sharing this virtual meeting/forum on Wednesday, 6/26: "Johns Hopkins Health Policy Forum: A conversation with CDC Director Mandy Cohen" https://hub.jhu.edu/events/2024/06/26/hopkins-health-policy-forum-a-conversation-with-cdc-director-mandy-cohen/
  18. Dakota15

    News from the USA, United States of America

    This was some months ago but sharing this snippet seen today from Dr. Fauci, 1/27/24 on Progress, Potential, And Possibilities podcast interview. At 33:25 minute-mark: "...the thing that is really fascinating, and the more and more we learn about it, the more fascinating it is, and it's really...
  19. Dakota15

    News from the USA, United States of America

    Winnipeg Free Press: 'A heart-racing experience: Women’s lives sidelined by an illness they’d never heard of' 'As she would find out many months, tests and specialists later, Clarke suffers from a disorder called POTS..it is life altering.' 'To that end, there’s also growing evidence of a rise...
  20. Dakota15

    News from the USA, United States of America

    STAT News, Morning Rounds: “Dispatches from the Aspen Ideas: Health” “CDC Director Mandy Cohen addressed a number of issues that were on attendees’ minds…that long Covid was very much on her mind because a close friend was struggling with it..”
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