I agree with @Cinders66 about the wording. It results in PWME (those who aren't keeping up with the science) thinking we're going to get a cure soon. Of course that is possible but not likely and it's not good for us emotionally to be making those assumptions and then getting disappointed.
Or, as The Mash Report put it,
"Post-truth is in fact just another name for wankers talking shit. Wankers have in fact been talking shit since the beginning of civilisation."
Since when is hope (or hopefulness) defined as "a trait that represents the capacity to identify strategies or pathways to achieve goals and the motivation or agency to effectively pursue those pathways" ? There must be a more accurate word to describe the construct that they're trying to measure.
Regarding PEM I am guessing there is some kind of cycle in the body of an ME patient which goes like this:
Overexertion -> affects X -> affects Y -> affects Z -> produces PEM symptoms.
(There could be more intermediate steps as well as X, Y and Z.)
This cycle would take a while after the...
Yes and if you don't agree with X's theory of ME (or even just state the fact that it hasn't been proved) then you are an enemy of all real ME sufferers!
Merged thread
Can anyone explain why a small group of ME "advocates" believe that SPECT scans can be used to diagnose ME, and why no one else shares this opinion? I keep seeing people arguing about it, but they're just re-stating their own beliefs without explaining why they think the other...
It seems like this team's work on hormones in ME/CFS could prove to be extremely important.
But that's just my amateur impression - what do other S4ME members think?
Cort's just published an article about this on Health Rising:
https://www.healthrising.org/blog/2019/10/02/powerful-models-predict-response-to-exercise-and-treatments-in-me-cfs/?fbclid=IwAR1LLNjH1FdLQhENJ57NHigfkBmYoGTMzEmq_0_HoPH3fG-Vm986xY71JEE
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