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The NICE review of it says that it isn’t dependency-forming, which I would take to mean no withdrawal. Agree with your first point though…

The drug is an orexin receptor antagonist, I don’t think it’s anything to do with circadian rhythms but correct me if I’m wrong!

Regarding the nightmares, clinical trials indicate that it’s generally well tolerated. Remember people are more likely to post online about it if they had a bad experience.

I don’t see why it would take a month to work - I’ve been reading up and it reaches peak plasma levels 1-2 hours after taking it, and it has an elimination half-life of 8 hours. Which to me says it’s something that works straight away. @Jonathan Edwards is that correct?

Where have you read this online?

Merged thread My doctor has prescribed this for me and just wondering what other peoples experiences have been like with it?

One of my doctors informed me today that this drug has been recently approved by NICE and is going to try me on it for my sleep issues. He said it will help when I feel too wired to get to sleep. Other insomnia sufferers might want to consider speaking to their doctor about it.

Yeah I haven't been around much, just prefer to spend my energy on non-ME related things, especially since acquiring a girlfriend (!!) (If you missed that post, you won't have to scroll far down my recent to find it) I said "after he started medical transition", by which I meant "shortly after...

Yes, that’s what I was trying to express, that men often seek help from doctors less than women. Thanks for putting my brain foggy post into better words! I wouldn’t be so sure about “biological sex”. I know of a person whose ME/CFS symptoms improved (though weren’t cured) after he started...

Just remember that there is societal pressure on men to be manly (i.e. not ill) and to under-report their symptoms.

Autumn booster 2023: Pfizer, no side effects in the first 26 hours after receiving it. I barely even have a sore arm.

Thank you.

Friend is in Canada, has ME/CFS. What's the Canadian equivalent of the ME Association or #MEAction and is it any good? i.e. providing information about the dangers of pushing yourself to exercise beyond your normal abilities.

Did you get much side effects? Previously I've had very mild side effects from Pfizer but I don't know if that'll be the same for the updated one?

I don't have the energy to go into this properly but. In general, autistic people find the way that neurotypical people communicate to be very frustrating and annoying. This is often still the case if a neurotypical person has ME.

Hey @Hoopoe, do you want to maybe screenshot this post for yourself? Then I can delete some private details.

Yes, this is my experience. . Maybe. Personally I've always been autistic. And I feel that non-autistic people with ME behave/talk quite differently to autistic people with ME. I have certainly found that my autism sensory issues have gotten FAR FAR WORSE since getting ME. (On the plus side, at...

Is this a members-only thread btw? If not then I will delete some of the details from my post after Hoopoe has read it.

Okay so, I thought I'd never be able to have a relationship while I'm sick (and I can barely leave the house), but I'm now 8 days off from my 6 month anniversary with my girlfriend. We met online through the Doctor Who fan community. If there is something you're interested in, you could take...