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Oh I nearly participated in this but then didn't because it was too much effort. Or maybe it was because I didn't meet inclusion criteria. Can't remember

This makes it sound like in traditional medicine the patient is being lazy... Because they don't have to do anything to make their medication work? Because they don't perform surgery upon themselves?? Ffs. Such lazy passive patients, huh? (Also, the person who wrote this has clearly never met a...

It's the new fashion to say that people struggling with financial hardship are just jealous of the rich. Rather than, you know, just wanting a reasonable quality of life for themselves and their family.

Will people be able to participate as healthy controls if they are the relative of a person with ME? If not, it will be more challenging to recruit healthy controls. But if yes, could it make the study biased as relatives of PWME are likely to share genes, and there would be likely to be...

If the Biobank's ME patient questionnaire is to be used for participant selection. It would be good to have a consultation about the questionnaire. When I filled it out, I had some concerns about the way that at least one of the questions was phrased. @Chris Ponting

Yeah lmao they don't record your "illness, progression and symptoms" accurately

But if it is only a small subset of ME-diagnosed people who have these abnormalities on MRI, then you'd need a rather large sample of PWME in order to be sure to catch them.

Would people not be able to feel whether or not they were experiencing traction??

I guess a trial of a surgery can never be blinded?

I wasn't even aware that there are any...

OK, here's the new plan that I'm going to try... (The numbers denote how many hours it is since I woke up) Zero: breakfast, morning supplements etc 1.5: iron supplement (because it has to be separated from one of my morning supplements by that amount of time) 7.5: levothyroxine 10.5 or later...

I'm not sure how soon you meant I should remind you...

No worries :) I suspect you mean "preclude from warning"? If so, my answer is: no, I am not saying that that precludes from making a warning.

Sorry I'm probably being thick but I don't understand the phrase "prevent to warn"?

I mean, I had a look just now on one of those online pharmacies, and they were selling rituximab. So yeah. Much more easily obtainable than surgery. And my other point is, the number of doctors who theoretically could (irresponsibly, yes) prescribe rituximab, is much higher than the number of...

Maybe because there's a difference in the potential for patients to access it. Rituximab is a drug, and as such there's potential for anyone to get it (through a doctor prescribing, or through dodgy online pharmacies, or even through illegal methods). Whereas CCI surgery is something that really...

"Openly promoting"? Or simply reporting what they have found in a group of patients?

Almost correct :) it says a group of more than 15 patients. It then says that it looks like probably a group of Me/cfs patients, but not all, are also suffering from CCI. And that the surgical treatment for CCI has improved or even made disappear the symptomatology of Me/cfs. That's a quotation...

Unfortunately, I can't sleep on an empty stomach. I have to eat before going to bed, or I don't sleep. And of course the "don't eat 3-4 hours before laying down" advice doesn't work for those of us who are bedbound or who have to spend a lot of time lying down (I'm the latter). I already cut...

Thanks. I was just hoping that I was overthinking, because it really shouldn't ought to be this complicated!