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I couldn't understand all the technical language but it seems to me that if there's a gene linked to suicide, it's most likely due to that gene being linked to mental health problems, or to autism (there are high rates of suicide amongst autistic people due to the difficulties we have in life...

Quad-demic?

Sorry Jonathan, not a chance. Not with a woman who tweeted that she sleeps easy at night thinking about her royalty checks. Also, trans organisations have many times in the past tried to arrange a polite conversation with her about the issues at hand, and she refused to even consider talking...

I just want to add - I've watched the first three episodes of this, think I just have one more to go. Only watched it because I wanted to see if the BBC had toned down the ableism. They hadn't. Incidentally, the two characters with ME are, as far as I can tell from looking the actors up on the...

Does anyone have any recommendations of relaxing music that helps you fall asleep (especially if "wired but tired")

Why did they deny you membership??

Feel free to count that as a "yes"

Sorry, I'm lost as haven't been following this in full - who is Nicky Proctor and what is her motion?

... in fact I now do have a big hard lump under the skin at my vaccine site from yesterday. I don't even know whether this is a good thing or a bad thing. At least it's not like the earlier vaccines where e.g. using the arm to change my t-shirt would cause pain, this one only hurts when I press...

"If the theory were true surely I should have been immune to those too" - I'd theorize that you're not part of the subgroup who don't catch stuff, I definitely think it's just a subgroup, and a relatively small one. For this subgroup, I don't think it's just that we're out and about less - many...

Yeah, I know you can still catch covid if vaccinated. I think though in the context that you don't usually catch viruses due to ME immune system weirdness - probably the reason you did get a bad case of covid in 2022 was because it was a novel virus your immune system hadn't encountered before...

Hmm. I wonder if maybe I can still trust in my immune system weirdness to protect me from covid... Even the first time I got vaccinated for covid, everyone (even healthy people) was talking about how awful the side effects were. And mine were really mild. Every dose/booster since*, my symptoms...

I know masks aren't supposed to affect your breathing, but I really think it does for me. I can walk around at home without getting breathless, but outside of home (ie masked) I'm breathless after walking a few metres.

I'm not going to repeat the thread title and the poll question again here. Obviously, don't vote if you don't have ME/CFS. If the answer is "sometimes", please vote "yes". If "yes", please vote for two options - whichever best fits you out of 1 & 2, and whichever best fits you out of 3 & 4.

Oh, damn damn damn damn damn. I had (whilst taking a lot of precautions all the same) been kind of relying on my immune system weirdness to protect me. (I'm like you with not getting colds and flu). I wonder what makes covid so different in this regard??? When you got it in 2022, were you fully...

Ok, talked to my parents about it, I'm going to just thank her for thinking of me and say I'll look into whether it's right for me, and then next time my dad sees her, which will be in a few weeks, he'll make sure she knows that I'm not not trying to get better. And according to my parents she...

Ughhh my sister has sent me a link to this article. She's not science literate like we are on here - she's into loads of weird health shit, didn't take the covid vaccine... She's not gonna understand if I attempt to explain why I'm not going to do the Perrin Technique, it's just gonna look to...

I just don't understand. After recently reading a thread where a member talked about how the local clinic was not following the NICE guidelines. And also read an older piece about how, in the case of a severely ill hospitalised patient, the Royal Lancaster Infirmary said they were following...

@Jonathan Edwards do you think we should change the name of this forum, then? Science For ME/CFS? I'm not trying to be funny, I genuinely see your points about how the name "ME" is viewed.

Yeah... hopefully the DECODE ME gene study should be more helpful given the large sample size.