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Now feeling a bit feverish/shivery. All perfectly normal vaccine side effects though, I'm sure it will pass soon. All that matters is that it doesn't make my ME worse, and I don't think it will.

One hour post-jab and my arm already hurts lol. The hardest part was being required to wait around for 10-15 minutes afterwards (to ensure no allergic reaction). My mum had phoned ahead to ensure that there would be chairs available, but we forgot to check the *type* of chairs that would be...

To be honest I think we can do both. Rich countries have hoarded way more vaccines that they need (I saw a graphic on Twitter yesterday... I think it was something like, Canada has 10 doses of vaccine per member of the population. And UK below that but still much more than the 2 doses needed per...

Getting my first dose of vaccine tomorrow. Pfizer. My GP surgery texted me yesterday to invite me to come for the vaccine. I was planning to wait a bit, because as a housebound person I'm at much less risk than others in my age group, but since the GP surgery has got the doses, it would make no...

I think this guy knows exactly what he is doing. He knows the truth about ME/CFS, but when he recovered from long covid, he decided to join the BPS lot for the sake of his career.

Sorry, on second thoughts I don’t have the energy to find the relevant thread from Dr Gurdasani for you, but hopefully somebody else here can.

Sadly no. I’m not sure I understand the specifics, but my understanding is that here has been a lot of poor data analysis recently. Dr Deepti Gurdasani, an epidemiologist, has been posting her analyses on Twitter and they’re very helpful. I will try to find the relevant thread for you. The...

I suppose the word "might" implies that it's a hypothesis, but that's far from being clear.

Sigh. MEA shared this graphic on their Facebook page: ...and encouraged people to download it to use it to "raise awareness". They did mention in their post that this is just a theory, but they said that nowhere on the graphic. So now lots of non-scientifically-literate people will be...

This is what we use on my bedroom window, it's excellent: Then we have this up on the window in the bathroom - there will be light coming through at the edges, but that's okay because I'm only in the bathroom temporarily: At the bottom of my bedroom door we place a draft excluder cushion...

Amongst the Severe ME community in the UK it is pretty much common knowledge that the MEA can't be relied upon to have our (severe patients') backs. It would be nice if that has changed though. Y'all remember the thread in here where an MEA person was defending statements they'd made about...

That really hasn't been my experience lol. But perhaps things have changed? For example I'm remembering the time a couple of years ago where a Very Severe ME patient was trying to explain that something that the MEA were saying was harmful, and CS told her she should start her own charity if...

I asked him "did you see I sent you an email". He said "yes. I never said I wouldn't do it!" So according to him, Mum didn't accurately communicate to me what he had said. Who knows whether that's true - they both tend to paint each other in a bad light. Anyway he said he'll do it. Phew.

Hahaha thanks

He hasn't responded to my email yet

White/cream

Surely installing a curtain rail would be a more invasive alteration for the house

The foam draft excluders arrived. Mum said she had to talk to Dad before putting them up. Apparently Dad isn't keen on the idea and is "pondering" whether to permit it or not. I'm pretty pissed off that he gets to choose whether or not to allow something that I need for my wellbeing. (It's...

Thanks Barry.

Thanks Barry. Please could you help me select a good product? I've had a look on Amazon and I don't know which would be the best one to pick. https://smile.amazon.co.uk/s?k=foam+draft+excluder&ref=nb_sb_noss Also, how do I figure out what size I need? My brain fog is making this quite...