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I'm presuming that's the volunteer position to which she refers, and if there's a status change, she'll notify it. And as you say, it doesn't suggest any reason for her being beholden to the head of a healthcare service in the organization she no longer works for. Even when she was writing a...

Thanks! I can't see why they would have met, but even supposing they had, and even supposing she knew the opinion and it was relevant to her then, she's not part of that infrastructure now. Important points, thanks. But there are plenty who believe that other than a sprained wrist from a fall...

I don't expect agreement on that, of course.

To be fair, Kay Hallsworth is no longer in the Navy: her bio statement begins with "was". (I disagree with the characterization generally - one of the criteria for consideration was "A history of interest in research on ME/CFS".)

The IAG has a very influential role in the editorial process. I'll expand on that in the June report. We will be advising on all of that, and will also make recommendations to Cochrane about processes generally.

No problem - she was in the Navy in 2019. Her bio makes it clear that's past tense, though. Yes, I know you don't know her views or her capabilities, and I realize you're not going to take my word for it. I wouldn't expect anything different. I don't believe every patient who ever depended on a...

On this point - there are many Cochrane groups dealing with chronic health problems, but they focus on parts of the body - like the gut, or hepato-biliary system, or airways - or on particular conditions that are large parts of the health and care systems and medical research, like cancers...

Remember when you were criticizing the plans for the review to be authored by staff? That's where I came in: the composition of the review team is clearly very different. On Cochrane's side, the new editorial group had to be negotiated. That took time. Then the respective roles and...

Thanks! Not too late. As the report says, this is an ongoing process: we're listening.

Public and individual notifications were all done within a few hours, on the same day.

In fairness, Kay's bio also makes it clear she is no longer employed by the Navy. I wouldn't have proposed her if I didn't have confidence in her knowledge, abilities with research, integrity, and skills in communication and persuasion. Power is always limited, but the IAG has a lot of it. I am...

George Faulkner definitely fits the description of people who have been fighting for a proper review: he's been doing so intensively with Cochrane since 2013 (see his bio for the IAG): for context, that's a couple of years before Tom Kindlon and then Robert Courtney submitted their comments on...

Thanks - I added the link just now.

Thanks!

Thank you! And yes, I would despair in that situation, too. I am confident we have enough expertise to do an excellent job, plus the commitment to do it, too, and the commitment of enough people to point out mistakes and suggest improvements as we go along.

Thank you! There will be a communication channel with groups that aren't on the IAG - and how that will work will be discussed with them: including S4ME. Your question 1) If you mean authors for the systematic review, there are 8...

Thanks - already added Andy's UK comment to the list for the IAG.

Ah - the email was definitely sent (I got mine). Here's the original from March about to sign up: Where can we get updates and answers to other questions? You can sign up for updates to this webpage by emailing: exerciseforme-cfsupdates@cochrane.org

Sorry if it looks like that, although I can't see how that certainty about something so specific is derived from the report. Either way, I can assure you "to have someone actively supporting GET for ME/CFS, to balance someone who does not support it" was definitely not the aim, and nor was that...

Perhaps you could look a bit more into George Faulkner's background? (Several invitations/proposals were declined - UK among them. The pandemic complicated things in very many ways for many people.) And as I pointed out, there's still one position to fill.