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  1. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I agree that it can have dreadful consequences for something that requires diversity of thought and will affect a lot of people. That's why we didn't do it that way. In case anyone's wondering: I am pretty sure I chatted with David Nunan briefly socially at a conference once. I interviewed...
  2. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks. (Though it's risky to assume that my views in June 2021 on any point are the same as they were in 2019, unless I said so. People learn things, make mistakes, and change their minds, including me.) I didn't choose members of the author team to ensure that any specific methodological was...
  3. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks! Not about any specific issue nor about criticism or criticizing the same thing persistently. However, the "is there a way we can increase the attention...?" does go straight to the question of effectiveness.
  4. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thank you - and everybody - for the time and thought you put into them. I will at times be slow getting to them, but I read them with care and appreciation for the thought and effort. Not responding doesn't mean it's ignored. I was a consumer advocate for decades, including leading a...
  5. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    For reference on this, here are some things I've written specific to this: The evidence base, the Cochrane review, and the AHRQ review in February 2019 The amendment to the Cochrane review in October 2019 On bias in protocols in May 2020 - which was around the time I was deep in the process of...
  6. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I agree that knowledge and awareness of context is critical, and it's an asset, not a bias. Sometimes, people need to change their minds - in the group charged with the task, and in the people who will accept or reject what they write: it's not only about what's in a GRADE table or a...
  7. Hilda Bastian

    Government and Insurance companies - establishing the BPS model

    Yes. I quoted George's publication in the first post I wrote about ME/CFS. And this is what I wrote to that point: There was another powerful camp that was attracted to the idea that cheap short interventions could get rid of ME/CFS, if only the person was willing to make an effort: insurance...
  8. Hilda Bastian

    Government and Insurance companies - establishing the BPS model

    Thanks for that, Jonathan. George is awesome. It's a privilege to know and work with him.
  9. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    If my own interests were front and center for me, I would never have written a word about ME/CFS. That's ineffably sad. It is literally because that is the case that I am doing it.
  10. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks. There are people who feel exactly the same way about authors you may approve of (although I realize it's also of course possible that you think they're all unsuitable). [Edit: just realized the subsequent post makes it clear that at least one person definitely gets a tick from you.] A...
  11. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I undertook to consult and consider alternative language to activist: I've done that, as well as some hunting around about the language people and groups use to describe themselves. Lots of activist/action and advocacy language. I've changed the language in the report to advocacy. Thank you!
  12. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Just to clarify, Julia Newton is a member of the author team, not a peer reviewer. In addition to her clinical and research roles, she is a medical advisor to Action For ME and ME Research UK. What the report says about this: Since Cochrane posted in March 2020 that we were considering authors...
  13. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I was replying to this: "I am not sure if you prefer not to read my posts @Hilda Bastian, or whether you just find them too close to home to respond".
  14. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    The inadequacy and cherry-picking in attending to other major systematic reviews is one of the criticisms I made of the amended review in October 2019, so, yes.
  15. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I read all the posts, but won't be replying to all of them. If I was bothered by this, I wouldn't have accepted this role, or the invitation to be a guest here.
  16. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks. I am reading the thread. If I don't answer a question that's been asked several times, it's not because I've overlooked it: it's because I'm either still thinking about how to answer it or I'm not going to answer it. I did not describe behavior as inappropriate or unethical: I talked...
  17. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    No, I'm not saying any of that. (Indeed I've said that I had invited one who declined on grounds of illness.) And as I've also said, I would not have proposed for authorship any person who I didn't think would do the job well. Thanks for the suggestions.
  18. Hilda Bastian

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I've replied previously that I will expand on the process in a methods report. Kay Hallsworth did not seek this role. I found her via internet searching. No person proposed for the author team was endorsed by any organization: it's a team of authors, not a committee, and no one is a...
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