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Hmm I have a hard time believing a small biotech like this would have any interest whatsoever in ME/CFS. My spidey senses are tingling but I can’t tell why

Ok so I’m a patient here I think I can give you a pretty balanced take. There is zero, I mean zero, support for people with ME/CFS outside of Dr. A’s clinic in BC. The BC women’s clinic takes you in for a year then kicks you out, not to mention it’s a 3+ year wait time to get in. So if you do...

I have to say his narrative at 19:00m hit especially hard, I heavily related with ME stripping away what I objectively thought was me. It’s sad that he dances around ME/CFS, one “health experts” brings it up at the end but frames it as a collection of lyme, viruses, mold etc…. My personal...

Holy cow that beginning was painful “health experts” talking complete baloney. I’d say being so entrenched in the health podcast world and having money actually probably set him back. This is exactly what my guys my age (late 20s mid 30s) think “health” is. That if you have an autoimmune...

Interesting they are an LTD not a non-profit:

When AIs are at AGI and good enough to figure out ME/CFS you won’t need markdown of your tests, my two cents. Until AGI I don’t see how LLM’s will solve anything ME/CFS related if they can’t create/link/build new ideas. There’s just not enough real research for them to even link anything...

if you think that is bad the newest subtyping has 3 controls:

what are they actually measuring here? ROCK1 concentration in the blood plasma? Also how many vials did you donate for this, I’m interested if this is a theranos situation lol I’ve worked in blood typing/blood tests automation I cannot imagine you can pack that many tests into one vial

The handling of their samples is also up to the individual, I believe you’re responsible for finding a phlebotomist to pull blood

Amtica does not screen their patients as far as I know, so who knows what they are gather data on. Second shouldn’t they match control size to patient size? Graph feels misleading

@Jonathan Edwards have you had a chance to view this paper? Would you think this could be a downstream effect of your proposed hypothesis?

Ah good catch, did not look up manufactures name brand

Just when you think everyone’s tried every medication not seeing any hits on old forums or Reddit for anyone trying the suggested therapeutic Perampanel.

Skimmed the paper, to me they make a ton of assumptions with little data. But also wouldn’t this be the people most exposed to AChEis were given PB? So the people most exposed to nerve agents used the most PB, it doesn’t mean that PB caused the illness?

Dang they used FLAMES instead of MAGMA. We need to use FLAMES somehow on the decode ME data

You must be familiar with the work the PFS network is doing? They are doing WGS right now which would shed some light on this. I don’t think I’ve heard of many cases of PFS presenting as CFS, aka with PEM. Most PFS patients work out as therapy since nothing else works.

I am very skeptical of this one. Anyways 2,000mg a day is $600 USD for 22.5 days; so $2,400 for the 90 day course. This is an outrageous price for such cherry-picked data. It is unfortunate they are selling this to sick people.

I feel like a guy this entrenched in ME/CFS research has to have visited or at least heard of this forum. I’d love for him to come here and hear his thoughts. I’d mainly ask how they screen candidates.

Putting brackets on non-significant results is pretty bad possibly a new low, another post, more ads and more random noise: https://threadreaderapp.com/thread/1970845686863122762.html

I don’t think he’s profiting off this tbh, just young naive and over confident. All his posts are just marketing to get more people involved so he’ll connect any and all research to a twitter thread then sell his tests at the end. He has no general understanding of biology and thinking that what...