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This reddit post just turned up for me, and I thought I'd post it here: https://www.reddit.com/user/lord_archimond/comments/mdkfee/lightning_process_summarized/

I've not seen things like this from ME patients: Surprising.

Looks like they may be running a Long Covid clinic?

Not seen the full text, but reference 35 of this: 35 White PD, Goldsmith KA, Johnson AL. et al; PACE Trial Management Group. Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised...

Steinkopf finds a lot of interesting information and I feel like I learn a lot from her blogs, but I also think that she can go too far sometimes or be insufficiently clear with her provisos. Possibly some of that's because of google's translations though.

Hopefully things get better for her soon. On a purely political note, there's some indication of a relatively high rate of natural recovery for teenagers, so possibly a chance of recovery coinciding with some random treatment being tried, and this potentially influencing Javid's views.

Carol Rubra responded to some concerns about an interview with Crawley, signing off with this: https://meassociation.org.uk/2016/12/correspondence-between-bbc-director-general-and-the-countess-of-mar-about-the-fitnet-nhs-trial-9-december-2016/ A meander of posts discussing the BBC (is it...

I meant a formal complaint. From what I've seen, complaints are rarely seen by those in UK medicine as a reason for serious investigation and self-reflection. There also seems to be a lack of alternative ways of encouraging serious investigation and self-reflection. Seems that complaints are...

Just saw that Fink paper is now largely behind a paywall. The pdf still seems accessible: https://ugeskriftet.dk/files/scientific_article_files/2022-05/v12210943_web.pdf and that is archived here...

Google translate: https://ugeskriftet-dk.translate.goog/videnskab/fakta-og-myter-om-kronisk-traethedssyndrom?_x_tr_sl=auto&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp There's a lot of claims in there about what was said, why things were done, etc, that are not supported by quotes. Maybe...

And the reply: https://academic.oup.com/occmed/article/72/4/e2/6590619

May be the one to have done some CFS papers? A paper with Hotopf: https://pubmed.ncbi.nlm.nih.gov/15469945/ One with Gregorowski: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1719984/ I don't think a complaint to the SMC is a worthwhile idea. Some careful questions might get some useful...

Just scrolling through the transcript, this bit on debate seemed relevant:

Maybe this was the other example I was thinking of: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3492714/

One of Fiona's mentions of her sister having ME/CFS... I'm sure I remember another too. https://www.sciencemediacentre.org/new-year-round-up-me-susan-greenfield-and-the-future-of-science-journalism/

I can't give her money! It's difficult to believe that Fox is not aware of being a propagandist.

I'd love a copy of that if it could be pm'd somehow.

I didn't see any supporting evidence for that claim about Garner and Landmark. The linked to blog makes this claim, but doesn't provide any evidence for it...

So is Vogt being invited because he runs Recovery Norge? Would be interesting to know more about exactly what's happening here.

Would be good to get more of an understanding of that. Norway seems a rare example of somewhere worse than the UK.