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  1. Esther12

    Long Covid in the media and social media 2022

    Have they said where patients will be sent instead?
  2. Esther12

    A systematic literature review of randomized controlled trials evaluating prognosis following treatment for adults with CFS, 2022, Chalder

    The Prospero entry: https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=86002 Tom Ingman is the one who was looking at what patients mean by 'recovery' for Chalder: https://www.s4me.info/threads/tom-ingman-research-student-chalders-protege-bps-nextgen.11438/
  3. Esther12

    Is it true that more than half of medical consultations are for MUS? A look at the evidence.

    This quote reminded me of this thread: Not sure if either of these references are for that 40% claim: 1 H. Haller, H. Cramer, R. Lauche, G. Dobos, Somatoform disorders and medically unexplained symptoms in primary care: a systematic review and meta- analysis of prevalence, Deutsch. Arztebl...
  4. Esther12

    The Guardian: I gave up hope of a cure for my chronic condition. And it’s made me happier than ever before

    To me, a lot of the criticism of this article seems unfair. It's not an article I'd write, and I can see people wishing it was different, but it's a Guardian column.
  5. Esther12

    Striking the balance with epistemic injustice in healthcare: the case of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis - Eleanor Byrne - Mar 2020

    Another piece from Eleanor Byrne that I think takes a rather stigmatising view of the controversies around ME/CFS and Long Covid, posted on a KCL blog founded by Carmine Pariante: https://www.inspirethemind.org/blog/understanding-long-covid-the-need-to-challenge-stigma-at-its-root If you're...
  6. Esther12

    Chronic illness makes UK workforce the sickest in developed world

    This story seems a bit strong considering the data presented. Here are the graphs relied upon for the argument about the UK's unique status...
  7. Esther12

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Thanks for posting this. It is annoying not having the language skills to be able to really check things out.
  8. Esther12

    (Dis)respect and shame in the context of ‘medically unexplained’ illness, 2022, Cheston

    Just want to add thanks to @kacheston for joining and discussing their work. Discussing these sorts of things can be complicated and it's easy for people to misinterpret things. I think people from different cultural and religious backgrounds can have very different understandings of shame. I...
  9. Esther12

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I've tried to get, via google, a translation of that document. It's probably a bit rough, but here it is:
  10. Esther12

    United Kingdom: Statement from the RCP and Professor David Oliver, 18 July 2022

    I remember seeing some tweets from Oliver on ME/CFs issues that I thought were concerning (marginally worse than you'd expect from those deferring to the UK establishment) - it seems that a lot of his tweets have been deleted though soi I can't double check my memory.
  11. Esther12

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Looks like the person defending the LP study in that clip (Siri Forsmo) has some prior comments on ME and Live Landmark: Not being able to speak the language limits my ability to really comment. I wish I could speak the language and keep up as Norway seems to be really keen to try and take...
  12. Esther12

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Here's the clip: I know almost nothing about facebook but couldn't see many options there.
  13. Esther12

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Thanks. Does facebook do things like transcriptions and translations? If not, could it be worth asking them to upload on youtube? If they have the file lying around that could be super easy for them.
  14. Esther12

    Lightning Process - discussion thread

    Just putting the youtube transcript of this in a quote box in case it's helpful for searching.
  15. Esther12

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Is there a recording of this that youtube could automatically transcribe and translate?
  16. Esther12

    The Extended Reattribution and Management Model - for treating somatisation - Fink et al, 2004 - Functional disorders, CFS

    Moved from this thread: Facts and Myths about Chronic Fatigue Syndrome, 2022, Per Fink et al. (Danish Medical Journal article) This post has been split into 3 parts for easier reading ________________ A bit OT, but I was just looking at this 2004-ish presentation from Fink...
  17. Esther12

    The Extended Reattribution and Management Model - for treating somatisation - Fink et al, 2004 - Functional disorders, CFS

    [Slide]: "Iatrogenic Factors of Somatic Over-Treatment” ! Insufficient knowledge or skills ! The physician’s definition of his own role ! The physician’s modesty ! Fear of loosing control or of ”opening Pandora’s box” ! Fear of dependence ! Lack of time ! Need for time-out" "Pre- and...
  18. Esther12

    The Extended Reattribution and Management Model - for treating somatisation - Fink et al, 2004 - Functional disorders, CFS

    [slide]: "Empathy and Emotional Feedback " I can hear that this has been hard on you " I understand you find it unpleasant " I can see this is unpleasant" "Often empathy is confused with acceptance. It is important to remember that this is not the case. You don’t have to accept the patient’s...
  19. Esther12

    Facts and Myths about Chronic Fatigue Syndrome, 2022, Per Fink et al. (Danish Medical Journal article)

    In case of value, this page can be easier to translate than the pdf...
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