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  1. Esther12

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Transcript here: https://www.nytimes.com/2021/10/26/opinion/ezra-klein-podcast-meghan-orourke.html? It might be a pain to access, so 1:
  2. Esther12

    Press release: Inspiritol Effective In COVID-19, Long-COVID And ME/CFS Patients

    On the plus side, 'Inspiritol' is a name that encourages scepticism.
  3. Esther12

    UK: Priority Setting Partnership for ME/CFS

    Looking through, and considering the sort of people who are best placed to get UK research funding, I definitely worry that this process could end up making things worse for us. I think that starting a project like this before there's been a real recognition of the problems that came before...
  4. Esther12

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    I'm not too keen on that sort of point (it's like Robin Murray's response to the PACE recovery paper in Fatigue). Anyway, in this case, the Journal of General Internal Medicine reports an impact factor of 5.128, compared to the Journal of Health Psychology's 3.231, with Fatigue being much lower...
  5. Esther12

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    In the drop down 'insert' box from the toolbar there's a 'code' option that seems to stop a lot of the forum's automatic features. It's under the 'quote' and 'spoiler' options.
  6. Esther12

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    This should work: https://letstalkaboutcbt.libsyn.com/cbt-for-chronic-fatigue-syndrome
  7. Esther12

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    'Hysteria' can mean a lot of different things, but to me some of the theories about secret sonic weapons sound implausible. For some of the symptoms being reported, and the pattern of people, it wouldn't surprise me if within 'Havana Syndrome' we now have people who would have developed fairly...
  8. Esther12

    Effect of Pain Reprocessing Therapy vs Placebo and Usual Care for Patients With Chronic Back Pain an RCT, 2021, Asher, Gordon et al

    'Brainwashing' also comes from cold war paranoia and it seems questionable that the original understanding of 'brainwashing' is something that is even possible. If it is, it seems it would need more extreme measures than occur within the NHS. There's also a history of people using 'brainwashed'...
  9. Esther12

    Effect of Pain Reprocessing Therapy vs Placebo and Usual Care for Patients With Chronic Back Pain an RCT, 2021, Asher, Gordon et al

    That the differences were present at baseline, rather than emerged with treatment, seem important here. Also, I know it's meant in a jokey way, but talking about the brainwashing group could be an unhelpful habit for discussing research like this, especially if people are also reaching out to...
  10. Esther12

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    At the same time, PoTS can be worsened by deconditioning and lots of people can have it briefly and recover, especially when young. There are a wide variety of people with these sorts of symptoms.
  11. Esther12

    [NIHR/MRC document] Framework for the development and evaluation of complex interventions, 2021, Skivington et al

    I thought it could be of interest to some people here, though I only had a very quick look myself. 172 pages. https://www.journalslibrary.nihr.ac.uk/hta/hta25570#/full-report
  12. Esther12

    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    I couldn't find online the full version of the Fitzpatrcik column originally published on Spiked, and then edited for the Guardian, but it's archieve here, with extra bits like: https://web.archive.org/web/20030617152624/http://www.spiked-online.com/Articles/00000002D3B6.htm It was a couple...
  13. Esther12

    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    I've not been able to find a book with this ‘Wessely lieutenant’ claim. But if it was written after Fitzpatrick wrote on ME/CFS in 2002, but before he had met Wessely, it must have been quickly written and published. Wessely appeared with Fitzpatrick at this Spiked event in May 2002...
  14. Esther12

    Understanding Long Covid: Nosology, Social Attitudes and Stigma, 2021, Byrne

    She wrote this earlier piece that I thought was a bit poor: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7426317/ It failed to engage with so many of the specific problems around ME/CFS and claims of expertise from within the medical profession, which is a problem when that's pretty central to...
  15. Esther12

    (Daily Telegraph) “How I became a target for the ME militants” by Dr Michael Fitzpatrick

    Yes. Everything I've seen of that looked like a needless disaster. It's so easy for people to make things worse and I worry that we've got more patients starting to act thoughtlessly again having forgotten, or never learnt, how often actions that can be taken are counter-productive.
  16. Esther12

    A Guideline for Reporting Mediation Analyses of Randomized Trials and Observational Studies, The AGReMA Statement, 2021, Lee et al

    Looks like this group includes the PACE trial's Kim Goldsmith: https://www.equator-network.org/reporting-guidelines/a-guideline-for-reporting-mediation-analyses-of-randomized-trials-and-observational-studies-the-agrema-statement/
  17. Esther12

    Long Covid epidemiology (prevalence, incidence, recovery rates)

    Thanks for posting that. A real lack of references to support the claims being made in there and I couldn't see who wrote it.
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