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  1. Esther12

    The Times: My Mother, Munchausen’s and Me by Helen Naylor review — the tyrant in the sick bed

    I've not read the article, but if people can fake having cancer then they can fake having ME. It could also be that this writer is being unfair on their mother. It's probably going to be difficult for us to judge. The upside of ME being such a stigmatised condition is that it wasn't one...
  2. Esther12

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    This paper says so little. This form of 'debate', where they present the points that they want to answer, in the form that they want to answer them, and then reply, seems a bit odd to me. They cite the paper on blinding that @Michiel Tack made interesting comments on. The references for this...
  3. Esther12

    FOI Documents relating to NICE response to the US IOM report on ME/CFS in 2015

    That was something my excerpts probably downplay - there were quite a lot about how changing views on how the condition is best diagnosed were likely to be important, with these comments being scattered through sections I found less interesting, but that others could be most interested in.
  4. Esther12

    BPS attempts at psychologizing Long Covid

    For some of these things I can find that I use the terminology of the biopsychosocial school just to more easily allow some discussions to take place, but there is a downside to that and it probably does mean I sound as if I'm coming from a position that is not quite my own. Being able to...
  5. Esther12

    FOI Documents relating to NICE response to the US IOM report on ME/CFS in 2015

    Thanks. I don't remember seeing that before. These were the bits I found most interesting. p3/48 p6 p10 p23 edit to reduce the chance of confusion: p27 Appendix to this meeting on p31. P37 p39
  6. Esther12

    BPS attempts at psychologizing Long Covid

    We've seen how some people have previously made exaggerated claims about anxiety, post-viral symptoms, etc, but I think that there's some reason to be cautious about viewing Long Covid from only that perspective. The global pandemic, lockdowns, reduced access to psychological care for those who...
  7. Esther12

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    'Quality of information in news media reports about the effects of health interventions: Systematic review and meta-analyses' Looks like they registered that review in 2018, before Atle's discussions with Tovey: https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=95032
  8. Esther12

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Did you have a link for them? I couldn't see them on the BMJ page but I remember just being blind to them previously.
  9. Esther12

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Not sure I remember their old CBT page [edit: David noticed that actually this is still up - it's in a different section of the KCL website]: https://web.archive.org/web/20190405062953/https://www.kcl.ac.uk/ioppn/about/difference/22-CBT-for-chronic-fatigue-syndrome
  10. Esther12

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Not sure I remember their old CBT page [edit: David noticed that actually this is still up - it's in a different section of the KCL website]: https://web.archive.org/web/20190405062953/https://www.kcl.ac.uk/ioppn/about/difference/22-CBT-for-chronic-fatigue-syndrome
  11. Esther12

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Here you go: https://web.archive.org/web/20190419160028/https://www.kcl.ac.uk/ioppn/depts/pm/research/cfs/patients/self-help @Sean - was it still online when you posted it? Would be interesting if it was being changed due to NICE. Looks like it was - google had these pages online on the 29th...
  12. Esther12

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Copied posts Here you go: https://web.archive.org/web/20190419160028/https://www.kcl.ac.uk/ioppn/depts/pm/research/cfs/patients/self-help @Sean - was it still online when you posted it? Would be interesting if it was being changed due to NICE. Looks like it was - google had these pages...
  13. Esther12

    Supporting patients with long COVID return to work, 2021, Madan, Briggs and Chew-Graham

    Ira Madan has a pretty poor history with CFS.
  14. Esther12

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Pulse coverage: https://www.pulsetoday.co.uk/news/clinical-areas/neurology/final-me-cfs-nice-guideline-recommends-personalised-care-and-support-plan/
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