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In addition to Amazon Smile, there's also Gooding. Gooding works for over 1800 online-shops (many big ones like Deutsche Bahn, iTunes, online pharmacies, Etsy etc.) and while Amazon Smile gives 0,5% of a purchase, they give up to 8%. I have an "app" (don't know the right term in English) in my...

Thank you! :)

From the Tweets of the Royal College of Psychiatrists About Wessely's talk: Then Prof. Howard is speaking about "confessions of a dementia doubter" and refers to "dementia activists". Sounds familiar.

I'm currently listening to Dr Davis' talk. The nanoneedle has now been tested on 30 pwME and 30 healthy controls (at the time of publication it were 20 pwME and 20 hc). This screenshot shows the next plans with the nanoneedle:

Youtube playlist of the talks: https://www.youtube.com/playlist?list=PLl4AfLZNZEQPNU0GYk3crnEnbQu_cYvO5

Jessica's channel is amazing. I started watching it after @Esther12 started this thread a year ago (thanks!). :) There are (among other interesting topics) many great videos about disability and chronic illness, e.g. needing a carer, being disabled in school, spoon theory, independence, "are you...

First pictures and a short summary.

Thank you! Will keep my eyes open regarding this topic. Best wishes to you and your family member with ME!

From what I've heard so far from participants it went really well (I wasn't there as I'm homebound). It was fully booked and several doctors attended. Apparently the topics were a good mix of science, advocacy and practical stuff. PwME, carers, doctors, scientists and patient advocates were able...

I read the thread and I have no answer why this physician claims that it's a "standard treatment" for ME in Germany. My only explanation would be that he thinks ME is a severe psychosomatic/psychiatric condition (what wouldn't be too surprising). I've searched through German ME forums/groups...

I'm the last person to defend the German healthcare system when it comes to ME (or chronic tiredness syndrome, as it's called here) – it's horrendous. But pwME are not treated with electroshock therapy, haven't heard of a single case.

A ME/CFS conference takes place in Hamburg, Germany today. It's organized by the German Association for ME/CFS (their first conference). The conference is aimed at medical professionals and pwME. It's accredited for Continuing Medical Education (CME). Program - PD Dr. med. Patricia...

:emoji_military_medal::emoji_runner: Thank you! Was looking for a superhero emoji, but couldn't find one. :)

Jen Brea is answering questions on Reddit: Edit: Sorry this is so long, just posted the link :)

@Andy has kindly already posted about this action. The fan club of Berlin football team Hertha BSC has shown its support for pwME in the Olympiastadion Berlin. I'm posting about it again, as they've now published an article in English and asked me to share. The English statement can be found...

This is amazing! I shared with the other volunteers and everyone though this is funny. Thanks for educating the German public, please consider team Gent from now on an honorary member of #MillionsMissing Germany. :)

Pictures from Berlin, Munich and Halle in Germany (more are being uploaded): https://meaction.smugmug.com/MillionsMissing-2019/Europe/Germany A few from Berlin The big red image says: "Imagine you life is gone. But you're still here.": Stories from severe pwME in the "black box"...

Germany The three #MillionsMissing visibility actions in Germany – in Berlin, Munich and Halle – were amazing. :) During the last week we had more press about ME in Germany than ever before (and new press is still being released). The link above that @Sly Saint kindly posted is from the...

We made it. Thank you! :)

#MillionsMissing Germany now has 749 subscribers, nearly there! :) We are very grateful for your support, so that volunteers can livestream via YouTube from the visibility actions in Munich, Halle and Berlin. Link to YouTube channel: https://www.youtube.com/channel/UCEaUZZDxY72llnlHmpZ2dJg...